ED Society Issues Heatwave Warning for People with Ectodermal Dysplasia The ED Society has issued a press release highlighting the hidden dangers that hot weather can pose for people living with ectodermal dysplasia (ED). As temperatures rise across the UK, the...
The Student Voice Prize – Beacon for Rare Diseases The Student Voice Prize is an annual, international essay competition that raises the profile of rare diseases within the medical field, particularly with medical students, nurses and scientists who may have...
CEO and Founder Diana Featured in The Lancet Neurology We are excited to share that our CEO and Founder, Diana, has been featured in the September issue of The Lancet Neurology. Diana appears alongside other leading professionals in the field for their contributions...
