The Student Voice Prize – Beacon for Rare Diseases The Student Voice Prize is an annual, international essay competition that raises the profile of rare diseases within the medical field, particularly with medical students, nurses and scientists who may have...
CEO and Founder Diana Featured in The Lancet Neurology We are excited to share that our CEO and Founder, Diana, has been featured in the September issue of The Lancet Neurology. Diana appears alongside other leading professionals in the field for their contributions...
When Harley was one, we took him to see doctors multiple times as his nails were peeling off, his teeth were starting to decay as quickly as they came through and he was suffering from a lot of pain, episodes of which we now know are seizures. We just knew...
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The Ectodermal Dysplasia Society
Unit 1Â Maida Vale Business Centre
