ED Society Issues Heatwave Warning for People with Ectodermal Dysplasia
The ED Society has issued a press release highlighting the hidden dangers that hot weather can pose for people living with ectodermal dysplasia (ED).
As temperatures rise across the UK, the charity is urging families, healthcare professionals and the wider public to be aware that many individuals affected by ED are unable to sweat normally due to absent or reduced sweat glands, placing them at significant risk of overheating and heat-related illness.
The press release shares practical advice on recognising the warning signs of overheating, staying safe during periods of hot weather, and managing temperature regulation challenges. It also highlights the real-life experiences of families affected by the condition and why greater awareness is needed.
Read the full article and heat safety guidance here.
