The ED Society is able to provide a lot of help and information to assist you in supporting your child through their educational years. We can help by providing information to assist you when liaising with the Local Education Authorities, School Head Teacher and School Doctor/Nurse. The ED Society have created a School Care Plan specifically relating to Ectodermal Dysplasia which can be downloaded and amended to suit your child and their needs. Please see the School Care Plan page for more information.
Update due to Covid-19 (August 2020)
With children returning back to school after many months away, we know parents will be worried and feeling anxious with regards to the struggles faced with overheating due to environmental temperatures being compared to temperatures as a result of Covid-19.
We have put together the letter below, which we suggest is kept with your childs current school care plan and will need to be discussed with their school and teachers. The letter will help to remind staff that all methods of cooling should be carried out as normal, before calling parents and sending the child home due to concerns over Covid-19.
We are also able to guide you through the Education Health Care Plan (EHCP) process (if necessary) which will ensure your child has all the appropriate care needed whilst at school. If you would like help with this process please email us.
In senior school we are able to help with a Student information card that will help the pupil when dealing with teachers.
The ED Society are happy to help families obtain the correct care in school for their child and, if necessary, we will attend meetings with the family, school and Local Education Authority.