The ED Society is able to provide a lot of help and information to assist you in supporting your child through their educational years. We can help by providing information to assist you when liaising with the Local Education Authorities, School Head Teacher and School Doctor/Nurse. The ED Society have created a School Care Plan specifically relating to Ectodermal Dysplasia which can be downloaded and amended to suit your child and their needs. Please see the School Care Plan page for more information.
We are also able to guide you through the Education Health Care Plan (EHCP) process (if necessary) which will ensure your child has all the appropriate care needed whilst at school. If you would like help with this process please email us.
In senior school we are able to help with a Student information card that will help the pupil when dealing with teachers.
The ED Society are happy to help families obtain the correct care in school for their child and, if necessary, we will attend meetings with the family, school and Local Education Authority.