Supporting a normal lifestyle

Welcome to the Ectodermal Dysplasia Society

The Ectodermal Dysplasia Society is a charity dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED).  We work together with people who have ED, their families, researchers, health and other professionals to develop and share expertise, increase awareness and understanding, and assist with the day-to-day management of ED.

The ED Society are proud to have produced two new books – “Everybody’s Different” & “A Guide to Ectodermal Dysplasia”.  For more information and how to purchase please visit our Shop

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