Home » Get Involved » How You Can Help

How You Can Help

The ED Society is a relatively small charity; consequently we are always looking for help from our members and supporters.

This help could be financial by way of joining the Society (if you haven’t already done so), fundraising, donations, fixed monthly donations or bequests.

But it could also be in terms of your time and expertise. Some skills that might be appreciated are:

PR/Journalism – Press Releases about the ED Society, it’s work and fundraising

Grant applications – help sourcing and applying for grants for our work and medical research

Form filling – completing DLA, Carers Allowance and Occupational Therapist (Air Con grants) forms can be daunting for some, perhaps you could help a local member with their forms.

Trustee – Perhaps you could become a trustee


Why volunteer for the ED Society?

There are many reasons why people choose to volunteer. Here are just a few reasons:

  • To help support the ED Society’s work and cause.
  • To provide fundraising ideas even if you are unable to fundraise yourself.
  • To write articles for our newsletter, such as sharing your experiences of living with Ectodermal Dysplasia; bullying and how you cope as a teenager; how you encouraged your child to wear dentures; how you cope with the heat, etc.
  • To share your experiences of being a parent of a child who is affected by Ectodermal Dysplasia or being affected yourself.
  • To bring awareness of Ectodermal Dysplasia to the public and professionals.
  • Proof reading documents, etc.

If you speak to people who already volunteer, they will probably tell you that they do it because they want to help other individuals and families in similar situations. So why not volunteer to help and have some fun at the same time!

We always need your help

If you could help the Society with any of the above or in any other way it would be much appreciated, please contact us