Chief Executive and Founder
Diana is the founder of the Ectodermal Dysplasia Society and has worked on a full time voluntary basis since 1996. She is married to Ian and has 5 children, two of which are affected by Ectodermal Dysplasia.
Diana has considerable experience of Ectodermal Dysplasia and her many duties include; attending conferences; making presentations to medical professionals, medical students, etc.; co-chairing the International Ectodermal Dysplasia Leaders meetings and conferences helping our Ectodermal Dysplasia communities around the world; attending school meetings and tribunals for Disability Living Allowance or Personal Independent Payment; proofreading patient information leaflets for the British Association of Dermatology; assisting with research projects into the many aspects of Ectodermal Dysplasia; liaising with families and individuals; writing articles for our monthly mailing, medical journals, information leaflets and the content of the ED Society website; liaising with medical professionals on behalf of the ED Society members; attending Trustee and Medical Advisory Board meetings.