Chief Executive and Founder
As Founder and CEO of the Ectodermal Dysplasia Society, Diana has worked on a full-time voluntary basis since 1996. She is married to Ian and has 5 children, two of whom are affected by Ectodermal Dysplasia.
She has gained considerable experience of Ectodermal Dysplasia (ED) over the years, and having two affected children has provided her with first-hand experience, empathy, compassion and the personal touch.
Diana is driven by her passion to help the ED community cope with their daily struggles. She fights to ensure individuals and families have all the information they need to receive benefits they are entitled to, and a duty of care in school/the workplace. She oversees everything the Society does including research, and any international collaboration.
She’s the energetic force in the ED Community leading with her heart in all that she does.
Outside of work......
"I enjoy spending time with family, doing crosswords and puzzles, and eating chocolate!"