Privacy Statement

We are committed to protecting your privacy and are registered with the Data Protection Act 1998.

We reserve the right to revise our privacy policy at any time, without notice and you should check back to this page of our site regularly, to be informed of any changes. To use our website it is not necessary to provide the Ectodermal Dysplasia Society with personal information. However, The Ectodermal Dysplasia Society takes no responsibility for the security of your information when you contact and provide information to any charities or businesses who are listed on our site.