It’s important to make sure that you get all the help that you’re entitled to.
If you or your child have been diagnosed with an Ectodermal Dysplasia syndrome, there are different benefits you will be entitled to, such as;
- Disability Living Allowance (DLA)
- Personal Independence Payment (PIP)
- Carer’s Allowance if you are aged 16 or over and spend at least 35 hours a week caring for a person who receives Disability Living Allowance
- A disabled tax class if you or your child receive either the higher rate of the mobility component of Disability Living Allowance or the enhanced rate of the mobility component of Personal Independence Payment.
- A driving license at age 16 if you receive the enhanced rate of the mobility component of Personal Independence Payment.
- Motability Scheme.
- A Blue Badge for anyone over two years old (even if they are not receiving Disability Living Allowance or Personal Independence Payment.)
- Disabled Students’ Allowance (DSA) grants to help course and accommodation costs students face as a direct result of a disability, ongoing health condition, mental health condition or specific learning difficulty.
- Ride Access Pass for UK theme parks – A Ride Access Pass removes the need for guests to wait within the main ride queue lines and enter through a dedicated entrance for Ride Access Pass users.
- Severn Trent WaterSure Scheme – through the Severn Trent WaterSure Scheme, families with children/or adults with additional needs and require access to more water can be awarded help with their water bill. To get help through WaterSure, you must have a water meter and receive certain benefits.
Benefit rates change yearly, and you can see the rates for this current year, along with additional benefits information in our leaflet – Claiming Benefits for Individuals with Ectodermal Dysplasia
The ED Society are more than happy to help you with the benefits process by checking through your application forms, writing supporting letters for the appeals procedure and assisting you and your family at tribunals.
Due to the fact that these forms take a lot of time, we ask that if your claim is successful, perhaps you could make a donation or hold a small fundraising event for us?
Funds raised help us to cover some of these costs to help you, which can often run into hundreds of pounds if we are required to travel to you for tribunals etc.
We have a very high success rate on the DLA applications/tribunals we have helped families with thus far.