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Terms and Conditions

Terms of use

These terms of use, together with this site’s privacy policy and our cookies policy, set out the terms on which you may use this site. Please read these terms of use carefully before you start to use the site.

By using this website you indicate you accept and agree to abide by these terms of use. If you do not agree to these terms of use please stop using this site immediately.

Any questions regarding this site and these terms of use should be sent to the Ectodermal Dysplasia Society, Unit 1 Maida Vale Business Centre, Maida Vale Road Cheltenham GL53 7ER or by email info@edscociety.co.uk

Site access

Access to this site is permitted on a temporary basis, and we reserve the right to withdraw or amend the service we provide on this site without notice.

From time to time, we may restrict access to some parts of this site to users who have registered with us.

 Changes to the site

From time to time we are likely to update sections of this site. However, at any given time any of the content or information on this site may be out of date and we are under no obligation to update that content or information.

If the need arises, we may suspend access to or close indefinitely part or the whole of this site. We will not be liable if for any reason this site is unavailable for any time at any period.

Links to and from this site

We do not affiliate ourselves with other websites.

The existence of a link from any organisation’s site to this site does not imply that we endorse the activities or views of that organisation, nor does it suggest any form of association or approval on our part.

Where this site contains links to other sites and resources provided by third parties, such links are provided for your information only. We have no control over the contents of third party sites or materials and accept no responsibility for them or for any loss or damage that may arise from your use of them.