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The ED Society offers support covering the different aspects of the Ectodermal Dysplasia syndromes.

There are many areas in which Ectodermal Dysplasia affects people’s lives, the information and services we do provide will help tremendously with day to day management.

It is not just the medical understanding of Ectodermal Dysplasia or the practicalities of living with Ectodermal Dysplasia, but also the emotional effects on individuals, parents, relatives and friends.

More information about support can be found on this website which includes information on Disability Living Allowance, Personal Independent Payment, Education Health Care Plan or the ED Society School care plan and much more.

If you cannot find the information you are looking for on our website or if you would just like to talk to someone who understands what you may be going through, please do not hesitate to email us or via telephone 01242 261332

The ED Society also has a Support Fund which is open to UK members; guidelines and application forms are available through the Support Fund section