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Fundraising for Ectodermal Dysplasia

Make a difference in your own way. Doing your own fundraising is your chance to support the Ectodermal Dysplasia community.

Whether you’re looking for ideas, inspiration or materials, this page has everything you need to kick-start your fundraising.

Everything the ED Society do is to help better the lives of people affected by an Ectodermal Dysplasia. We receive almost all our funds from our generous supporters.

Amazing people like you – who believe in our work – believe that everyone is worth supporting. We are incredibly grateful for your enthusiasm and effort, so thank you for joining us and helping to support our ED families. 

We have had so many of you take part and organise some fantastic fundraising events and have been kind enough to tell us all about it. Take a look at some of our members fundraising stories.

group stood together in Moshi, Tanzania read to begin kilimanjaro climb

Reaching the “Roof of Africa” for Ectodermal Dysplasia.

“In September 2023 I will be climbing Mount Kilimanjaro to raise funds for the ED Society. ” Adam says.

“I have chosen the ED Society as they have been extremely supportive to my friend, Leonie, and her family in helping with medical referrals and operations from a very young age.”

Read Adam’s full fundraising story here.


We believe everyone who is affected by Ectodermal Dysplasia has the right to a normal lifestyle

In our ED Fundraising Pack, you’ll find tips, advice and lots of inspiration to help you make fundraising for Ectodermal Dysplasia a success.

Fundraising shouldn’t feel like a lot of hard work, it should be simple and make you smile. We’re here to support you with whatever you decide to do, so you can focus on all the fun stuff.

If you’re stuck for ideas or want some advice on any fundraising materials you may need, don’t hesitate to contact us or take a look at our ideas page.

A reminder that the ED Coffee Morning takes place every year on the second Saturday in November – but you can hold one when ever you want.

Thanks again and have a great time fundraising!