We believe everyone who is affected by Ectodermal Dysplasia has the right to a normal lifestyle
Everything the ED Society do is to help better the lives of people affected by an Ectodermal Dysplasia. We receive almost all our funds from generous supporters.
Amazing people like you – who believe in our work – believe that everyone is worth supporting. We are incredibly grateful for your enthusiasm and effort, so thank you for joining us and helping to support the ED Society families. We have had so many of you take part and organise some fantastic fundraising events and have been kind enough to tell us all about it. Please take a look at some of our members fundraising stories.
Say hello to our Fundraising coordinator Stuart…..
Jeans for Genes Day occurs every year in September. The ED Society have joined the Jeans for Genes 50/50 income share scheme. Monies raised from fundraising done by you on this day will be split and half given to us. Find out more on how you can get involved here.
Fundraising shouldn’t feel like a lot of hard work, it should be simple and make you smile. We’re here to support you with whatever you decide to do, so you can focus on all the fun stuff. If you’re stuck for ideas or want some advice on what fundraising materials you may need, don’t hesitate to contact us or take a look at the ideas page.
Thanks again and have a great time fundraising!