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Nick Briggs trustee ectodermal dysplasia society


Make a difference in your own way. Doing your own fundraising is your chance to support people affected by Ectodermal Dysplasia.

Whether you’re looking for ideas, inspiration or materials, this page has everything you need to kick-start your fundraising.

The outbreak of coronavirus is affecting all our lives in lots of different ways.  If your fundraising plans have been postponed or cancelled, we’ve put together a selection of ideas for virtual fundraising that you can do from home instead.

We believe everyone who is affected by Ectodermal Dysplasia has the right to a normal lifestyle

Everything the ED Society do is to help better the lives of people affected by an Ectodermal Dysplasia. We receive almost all our funds from generous supporters.

Amazing people like you – who believe in our work – believe that everyone is worth supporting. We are incredibly grateful for your enthusiasm and effort, so thank you for joining us and helping to support the ED Society families.  We have had so many of you take part and organise some fantastic fundraising events and have been kind enough to tell us all about it.  Please take a look at some of our members fundraising stories.

Say hello to our Fundraising coordinator Stuart…..

Please look at the Fundraising Pack where you’ll find tips, advice and lots of inspiration to help you make fundraising a success or get in touch via email if you would like to become a fundraiser.

Fundraising shouldn’t feel like a lot of hard work, it should be simple and make you smile. We’re here to support you with whatever you decide to do, so you can focus on all the fun stuff. If you’re stuck for ideas or want some advice on what fundraising materials you may need, don’t hesitate to contact us or take a look at the ideas page.

Thanks again and have a great time fundraising!