Home » Get Involved » Fundraising


Lizzie Taylor 2k Junior Marathon
Stuart Atkiss in the 2019 London Marathon

Fundraising Update December 2019:

Thank you to our wonderful ED community & friends for the amazing fundraising that has taken place over the last few months, which amounts to £8733.13.  Wow…..what a great way to end the year!!  

We would like to thank for holding the following fundraising:

Glen Evans – Raffle, Louisa Mcnair – birthday fundraiser, Scott Gallacher/Rowley Turton – Christmas hamper raffle, Wendy & John Hendra – Garden Party, Scott Slade – Bucket collection at Barclays, Nick Briggs & Jessica Banks – Tough Mudder run, Ruxley Church – coffee morning, Sarah Crosby – birthday fundraiser, Chantelle Epton – collection box at work, Jennifer King – 10k Plymouth Marathon, Sam O’Brien – Going the Extra Mile Charity Pot,  Andrew Berry – Great North Run, Lizzie Taylor – 2k Junior Bournemouth Marathon, Mr. Watkins – Stafford 10k, Alex Cook – Bike ride,  Linzi Munro – ABP Southampton 1/2 Marathon, Gill Squires – Coffee Morning.

We believe everyone who is affected by Ectodermal Dysplasia has the right to a normal lifestyle

Everything the ED Society do is to help better the lives of people affected by an Ectodermal Dysplasia. We receive almost all our funds from generous supporters.

Amazing people like you – who believe in our work – believe that everyone is worth supporting. We are incredibly grateful for your enthusiasm and effort, so thank you for joining us and helping to support the ED Society families.  We have had so many of you take part and organise some fantastic fundraising events and have been kind enough to tell us all about it.  Please take a look at some of our members fundraising stories.

Say hello to our Fundraising coordinator Stuart…..

Please look at the Fundraising Pack where you’ll find tips, advice and lots of inspiration to help you make fundraising a success or get in touch via email if you would like to become a fundraisier.

Jeans for Genes Day occurs every year in September.  The ED Society have joined the Jeans for Genes 50/50 income share scheme. Monies raised from fundraising done by you on this day will be split and half given to us.  Find out more on how you can get involved here.This image has an empty alt attribute; its file name is admin-ajax-300x151.jpg

Fundraising shouldn’t feel like a lot of hard work, it should be simple and make you smile. We’re here to support you with whatever you decide to do, so you can focus on all the fun stuff. If you’re stuck for ideas or want some advice on what fundraising materials you may need, don’t hesitate to contact us or take a look at the ideas page.

Thanks again and have a great time fundraising!