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Make a difference in your own way. Doing your own fundraising is your chance to support people affected by Ectodermal Dysplasia.

Whether you’re looking for ideas, inspiration or materials, this page has everything you need to kick-start your fundraising.


Upcoming Fundraising Events:

National Walking Month

Looking ahead to Fundraising for ED in 2022….

After starting 2021 in lockdown, it was wonderful to see so many events returning and our ED community back at it, fundraising across the country for Ectodermal Dysplasia.

February is Ectodermal Dysplasia Awareness Month, and there will be big celebrations throughout the year for the Queen’s Platinum Jubilee in June 2022. The TCS London MarathonThe Big Half and Swim Serpentine are all coming back in 2022.

We believe everyone who is affected by Ectodermal Dysplasia has the right to a normal lifestyle

Everything the ED Society do is to help better the lives of people affected by an Ectodermal Dysplasia. We receive almost all our funds from generous supporters.

Amazing people like you – who believe in our work – believe that everyone is worth supporting. We are incredibly grateful for your enthusiasm and effort, so thank you for joining us and helping to support the ED Society families.  We have had so many of you take part and organise some fantastic fundraising events and have been kind enough to tell us all about it.

Need some inspiration…..please take a look at some of our members fundraising stories.


In our ED Fundraising Pack, you’ll find tips, advice and lots of inspiration to help you make fundraising for Ectodermal Dysplasia a success, or you can get in touch with us via email if you would like to become a fundraiser.

Fundraising shouldn’t feel like a lot of hard work, it should be simple and make you smile. We’re here to support you with whatever you decide to do, so you can focus on all the fun stuff. If you’re stuck for ideas or want some advice on what fundraising materials you may need, don’t hesitate to contact us or take a look at the ideas page.

Say hello to our Fundraising coordinator Stuart Atkiss

Thanks again and have a great time fundraising!