Gloucestershire Hits Radio Interview – June 2022

Rare Diseases: We need to think about climate change too – The Lancet September 2024

Hannah Harpin and Rachel Stewart-Illingworth are battling to fight stigma – Yorkshire Post May 2022

Soaring inflation could be worse for the sector than the Covid-19 pandemic, charities warned – Third Sector May 2022

Breakthrough in research for Ectodermal Dysplasia – Charity Today January 2022

Why the heatwave can be a nightmare for people with this rare disease – Wales Online August 2018

Brothers aged 5 and 6 have rare condition which causes their hair, teeth and nails to grow abnormally – October 2015

Tayen, Rarity Life Magazine, Acceptance is a hot topic – June 2022

The Fragility with Beauty, Hannah Harpin Rarity Life Magazine – Feb 2022

Medics for Rare Diseases (M4RD) featured Ectodermal Dysplasia on #MysteryMonday – April 2022

As official Charity partners of UK Charity Week campaign, we are super excited to announce the ED Society will now hold a monthly column spot.

Breakthrough in Research – February 2022

Small UK Charity Celebrating – December 2021