Families, clinicians, and researchers came together to share progress and hope. 10–12th June 2025 | Austin Court, Birmingham, UK In June 2025, the Ectodermal Dysplasia Society hosted the 9th International Conference for Ectodermal Dysplasia (ICED25) at Austin Court in...
The Yearly ED-Lines 2025 Our Yearly ED-Lines newsletter is here — celebrating an incredible year of progress, awareness, and community! Highlights include ICED25, which showed the true power of our community — families, and professionals uniting with compassion and...
The ED Christmas Party 2025 We’re so excited to announce that our Annual ED Christmas Party is back — and we’d love you to join us! 📅 Date: Saturday 6th December 2025, 11am – 4pm📍 Venue: Hatherley Manor Hotel & Spa, Cheltenham This is our favourite event of the...
New NHS Rare Disease Collaborative Network for Ectodermal Dysplasia We’re pleased to announce the launch of a dedicated NHS Rare Disease Collaborative Network (RDCN) for individuals with Ectodermal Dysplasia (ED) and related conditions. This exciting development was...
Contact Us
The Ectodermal Dysplasia Society
Unit 1 Maida Vale Business Centre
