Ectodermal Dysplasia Awareness Month – February 2024
Every year, we invite our ED community to come together with others affected by Ectodermal Dysplasia to raise awareness about this rare condition.
February is recognized globally as Ectodermal Dysplasia Awareness Month. The more of us who unite, the greater the impact we can make.
There are over 180 identified types of Ectodermal Dysplasia.
Regardless of the time of year, you can help spread the word about Ectodermal Dysplasia and support our incredible community through awareness, research, fundraising, volunteering, and more.
How can I help?
It’s entirely up to you how you show your support – Check out our fundraising ideas here.
- You could hold your own small event
- Donate
- Spread the word – You can help to educate your community by sharing the facts, videos and resources about ectodermal dysplasias, either online or in-person
- #SharingIsCaring – telling others about your experiences with Ectodermal Dysplasia is crucial to raising awareness of the condition.
- Share your story with friends in a video or photo on social media (don’t forget to tag us)
- You can buy some ED merch……. help raise awareness by showing off your new purchase from the ED Shop.
- Change your profiles on social media to one that celebrates Ectodermal Dysplasia Awareness! Why not use our ED Awareness logo?
- Celebrate those you love – tag us in a photo holding our poster
- Go blue for International Ectodermal Dysplasias Awareness Day and celebrate with us on 22nd February. Don’t forget to share with everyone on social media and tag us – #EDAwarenessMonth #EctodermalDysplasia #NoSweat
- And finish the month by joining forces for Rare Disease Day on 28th February – where different rare disease organisations all work together to raise awareness.
We can help by sending you fundraising material such as sponsor forms, leaflets, and merchandise like our ED wristbands to help you with your event.
Download our fundraising pack here
Resources
Profile Picture
I Love Someone Poster
Know The Signs Poster
Our fundraisers
We extend our heartfelt gratitude to everyone in our ED community who generously volunteers their time for fundraising and to those who have already donated to the Society during these challenging times. Your contributions are vital to the future of the ED Society.
Your enthusiasm, donations, and time significantly impact the lives of children and adults affected by Ectodermal Dysplasia syndromes. When you donate to the Society, your gift immediately helps provide essential support services and hope to our families.
