ED Awareness Month February 2026 Every February, our community comes together for ED Awareness Month — a time to raise awareness of the ectodermal dysplasias, share lived experiences, and remind everyone affected by ED that they are not alone. Throughout the month,...
The ED Christmas Party 2025 We’re so excited to announce that our Annual ED Christmas Party is back — and we’d love you to join us! 📅 Date: Saturday 6th December 2025, 11am – 4pm📍 Venue: Hatherley Manor Hotel & Spa, Cheltenham This is our favourite event of the...
Become a Friend of the ED Society Our membership fees have been the bedrock of the ED Society for over 20 years. After careful consideration, we have decided to change from annual membership to monthly contributions and invite you to join us as a ‘Friend of’ the ED...
Contact Us
The Ectodermal Dysplasia Society
Unit 1 Maida Vale Business Centre