ED Society Issues Heatwave Warning for People with Ectodermal Dysplasia The ED Society has issued a press release highlighting the hidden dangers that hot weather can pose for people living with ectodermal dysplasia (ED). As temperatures rise across the UK, the...
Families, clinicians, and researchers came together to share progress and hope. 10–12th June 2025 | Austin Court, Birmingham, UK In June 2025, the Ectodermal Dysplasia Society hosted the 9th International Conference for Ectodermal Dysplasia (ICED25) at Austin Court in...
The Yearly ED-Lines 2025 Our Yearly ED-Lines newsletter is here — celebrating an incredible year of progress, awareness, and community! Highlights include ICED25, which showed the true power of our community — families, and professionals uniting with compassion and...
New NHS Rare Disease Collaborative Network for Ectodermal Dysplasia We are delighted by the establishment of a dedicated Rare Disease Collaborative Network (RDCN) for individuals with Ectodermal Dysplasia and related conditions. Approved by NHS England in February...
