Families, clinicians, and researchers came together to share progress and hope.
10–12th June 2025 | Austin Court, Birmingham, UK
In June 2025, the Ectodermal Dysplasia Society hosted the 9th International Conference for Ectodermal Dysplasia (ICED25) at Austin Court in Birmingham. The event brought together families affected by ED, clinicians, researchers, and international support groups from more than 20 countries.
Because ectodermal dysplasia is such a rare condition, opportunities for families and professionals to meet are limited. ICED25 provided a unique space to share knowledge, build connections, and strengthen collaboration across borders and disciplines.
We’re pleased to share the full conference summary, which captures the key themes, presentations, and discussions from across all three days — including the dedicated Family Day, where families connected directly with experts and one another.