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New NHS Support Network for Ectodermal Dysplasia Patients

New NHS Support Network for Ectodermal Dysplasia Patients

New NHS Rare Disease Collaborative Network for Ectodermal Dysplasia We are delighted by the establishment of a dedicated Rare Disease Collaborative Network (RDCN) for individuals with Ectodermal Dysplasia and related conditions. Approved by NHS England in February...
Rare diseases: we need to think about climate change too

Rare diseases: we need to think about climate change too

CEO and Founder Diana Featured in The Lancet Neurology We are excited to share that our CEO and Founder, Diana, has been featured in the September issue of The Lancet Neurology. Diana appears alongside other leading professionals in the field for their contributions...