Our ICED25 conference will highlight excellence within the rare conditions field, and prompt discussion, reflection, and action. World-class speakers have accepted an invitation to present their research, including updates on the first recombinant protein therapy...
It’s that time of year again—Ectodermal Dysplasia Awareness Month is here! February is recognised globally as ED awareness month, a time where we can all come together to shine a light on Ectodermal Dysplasia (ED), and we need YOU to help make this the most impactful...
The latest edition of our annual newsletter, The Yearly Ed-Lines, is now available! This year’s newsletter is a heartfelt reflection of everything our ED community has achieved and experienced together. Inside, you’ll find: 💖 Inspirational Stories of hope, courage,...
When Harley was one, we took him to see doctors multiple times as his nails were peeling off, his teeth were starting to decay as quickly as they came through and he was suffering from a lot of pain, episodes of which we now know are seizures. We just knew...
Become a Friend of the ED Society Our membership fees have been the bedrock of the ED Society for over 20 years. After careful consideration, we have decided to change from annual membership to monthly contributions and invite you to join us as a ‘Friend of’ the ED...
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The Ectodermal Dysplasia Society
Unit 1 Maida Vale Business Centre