Why the EDELIFE clinical trials are just for boys We often get asked “Why is it always the boys?” when it comes to the latest research trial. Boys affected by XLHED exhibit the full symptoms Read...
XLHED Clinical Trials in the UK We are super excited to announce that the clinical site for the EDELIFE XLHED trial is open in Cardiff. WE NEED YOU! Like all clinical trials, the study needs to have enough participants to evaluatethe potential treatment before it can...
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The Ectodermal Dysplasia Society
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