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Disability Living Allowance (DLA) is for children under 16 who need extra looking after or have walking difficulties.

DLA is a tax-free benefit made of 2 components (parts) ‘the care component’ and ‘the mobility component’. You may be entitled to receive one component or both.

To be eligible for DLA you must need help for 3 months prior to making a claim, and are likely to need it for at least another 6 months.  It is not necessary to wait for the three month qualifying period to be completed before making the claim. Children can only get DLA for help with personal care if they are 3 months old or over and need more help or supervision than other children of the same age.  The rate of DLA received depends on the amount of attention needed and the sort of help or supervision needed.  For example, someone to keep an eye on them, help with things such as washing, dressing, communicating with other people, reminding or prompting or encouraging to do things (but this may depend on how much help they need) or other similar activities. 

Keep a diary


It’s a good idea to keep a diary of how ED affects your child for a week before you fill in the form – particularly if they have bad days and good days. Write down your child’s difficulties, the help or care you gave and how long it took.

You might want to keep a diary for longer than a week.

You can use this DLA Diary here – it covers 7 days and gives you tips on what to write down. 

This diary can really help you when you fill in the form. You can also send it with the form as evidence if you wish. 

There are 3 rates awarded for DLA:

DLA Care Component

The rate the child gets depends on the level of looking after they need eg:

High Rate  –  help or supervision throughout both day and night, or they’re terminally ill

Middle Rate  –  frequent help or constant supervision during the day or  supervision at night

Low Rate  –  help for some of the day or night

DLA Mobility Component

Children can only get DLA for help with getting around if they are aged 3 or over.   Remember all children need some help and supervision when they are out of doors, therefore the child must need more help or supervision than others of the same age. There are 2 rates.

High Rate  –  they can’t walk, can only walk a short distance without severe discomfort, could become very ill if they try to walk, they’re blind or severely sight impaired

Low Rate  –  they can walk but need help and or supervision when outdoors

disability image

Children under 16 must require substantially more guidance than other children of the same age in normal health.  The term “virtually unable to walk” is assessed by considering the distance, speed, length of time a person can walk, the manner of walking and the degree of discomfort caused.  For example, the child is aged 5 or over and can walk, but needs someone with them to make sure they are safe or to help them find their way around in places they do not know well.

It may be possible to claim mobility allowance if the child is restricted by tightness of skin, if the soles of their feet are badly affected, if they are too hot or cold to the extent that their muscles are painful and will not function normally, if they are lethargic from the heat or cold, or are unable to walk without discomfort or in danger of overheating.

As at April 2022 the weekly rates of payment are:

DLA Mobility Component per week              DLA Care Component per week

High Rate               £64.50                                        High Rate               £92.40

Low Rate                £24.45                                        Middle Rate            £61.85

                                                                                  Low Rate                £24.45

DLA and PIP can act as a gateway to additional types of financial help.  For example, if you are in receipt of income support or housing benefit and you successfully claim DLA or PIP, you should qualify for the relevant disability premiums used in calculating entitlements to these benefits (e.g.  disability premium, disabled child premium).  This should lead to higher payments.

You can download and complete a DLA claim form online here.

For more information on DLA, other benefits, and what to do if your claim is unsuccessful, please read our leaflet Claiming Benefits for Individuals with Ectodermal Dysplasia or email us.