It’s important to make sure that you get all the help that you’re entitled to.

If you or your child have been diagnosed with an Ectodermal Dysplasia syndrome, there are different benefits you may be entitled to, such as;

• Disability Living Allowance (DLA) – for children to help with the extra costs of looking after a child who is under 16 and has difficulties walking or needs much more looking after than a child of the same age who does not have a disability.
• Personal Independence Payment (PIP) – For over 16s to help with extra living costs if you have both a long-term physical or mental health condition or disability, and difficulty doing certain everyday tasks or getting around because of your condition.
• Carer’s Allowance – if you are aged 16 or over and spend at least 35 hours a week caring for a person who receives Disability Living Allowance.
• Disabled Tax Disc -iIf you receive either the higher rate of the mobility component of DLA, the enhanced mobility rate of PIP, War Pensioners’ Mobility Supplement or Armed Forces Independence Payment you are entitled to tax your vehicle in the disabled tax class.
• Motability Scheme – helps disabled people get mobile by exchanging their mobility allowance to lease a car, scooter, or powered wheelchair.
• Blue Badge – for anyone over two years old even if they are not receiving Disability Living Allowance or Personal Independence Payment.
• Disabled Students’ Allowance (DSA) – grants to help course and accommodation costs students face as a direct result of a disability, ongoing health condition, mental health condition or specific learning difficulty.
• Ride Access Pass for UK theme parks – this removes the need for guests to wait within the main ride queue lines and enter through a dedicated entrance for Ride Access Pass users.
• WaterSure Scheme/Plus – for families with children/or adults with additional needs and require access to more water can be awarded help with their water bill. To get help through WaterSure, you must have a water meter and receive certain benefits.

Benefit rates change yearly, and you can see the rates for this current year, along with additional benefits information in our leaflet – Claiming Benefits for Individuals with Ectodermal Dysplasia

The ED Society are more than happy to help you with the benefits process by checking through your application forms, writing supporting letters for the appeals procedure and assisting you and your family at tribunals.