Useful Links
Click on the relevant logo below and you will be taken to their website:
Contact for Families with Disabled Children
Incontinentia Pigmenti International Foundation
Changing Faces
R.N.I.B
Cleft Lip & Palate Association
Ectodermal Dysplasia International Network.
Care.com
Fight For Sight
British Society of Paediatric Society
British Society for Disability and Oral Health
Centre for Appearance Research
British Association of Dermatologists
Genetic Alliance Uk
Therapy Directory Uk
EEC Syndrome International Group
Genetic Disorders Uk
Orphanet
RareConnect
Rare Diseases Uk
EspeRare
Eurodis
