School Health Care Plan
Starting Nursery or School?
Beginning nursery or school is one of the biggest milestones in your child’s life. Whether it’s their very first day, or they’re moving to a new school, it’s vital that all staff — including teachers, support staff, and lunchtime supervisors — understand Ectodermal Dysplasia (ED) and how it may affect your child.
School Health Care Plan
The ED Society provides a School Health Care Plan, designed for nurseries, schools, colleges, and universities. This document explains in detail:
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how a child may be affected by ED,
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the procedures schools should have in place, and
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practical steps to keep children safe while helping them get the most from their education.
Download your ED Health Care plan.
Student Information Cards
For secondary school pupils, a Student Information Card can be particularly useful.
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One side of the card shows the student’s name and medical condition.
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The reverse lists the permissions they have (e.g., carrying water, removing uniform items, leaving class if needed).
This simple tool allows students to discreetly explain their needs to any member of staff — including supply teachers, lunchtime staff, and activity leaders.
Understanding Overheating and Concentration
One of the most significant challenges for children with ED is overheating. When this happens, their ability to focus in class is affected:
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At first, they may appear to be listening but are unable to absorb information.
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Concentration may come and go, and eventually they may disengage from the lesson.
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This can sometimes lead to restlessness — fiddling with pens, clothing, or becoming disruptive — which may be misunderstood by staff.
Often, children themselves don’t realise why this is happening, which can cause confusion if they are disciplined. Providing staff with clear information helps prevent misunderstandings and ensures children receive the right support.
Encouraging Confidence
Children with ED should be encouraged to take part in all the activities they enjoy — swimming, gymnastics, football, Cubs, Brownies, or anything else that interests them. With the right support and adjustments, ED should not stop a child from joining in. Confidence is one of the most valuable gifts you can help your child develop.