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Fundraising in 2022

After spending a lot of the time in lockdown over the last two years, it is wonderful to see so many events returning and our community back at it, fundraising across the country for Ectodermal Dysplasia.

Looking ahead to 2022….


May is National Walking Month. Why not organise a walking event at your school, work or in your local community? Walking is a great activity for the whole family and is such a simple way of getting involved and making a difference.


The Platinum Jubilee of Elizabeth II will be celebrated in 2022 in the Commonwealth, to mark the 70th anniversary of the accession of Queen Elizabeth II on 6th February 1952. With an extended bank holiday weekend at the beginning of June, it is inevitable that street parties are going to be the way forward when celebrating this milestone. The Platinum Jubilee celebrations will begin on Thursday, 2nd June, and will continue over the weekend until 5th June 2022 – Get involved with the Platinum Jubilee.


Maybe you have thought of planning something for this occasion and fundraise for ED at the same time? Cake sales, party entry, raffles? Here are some great activities to celebrate with the children – 25 activities for celebrating the Queen’s platinum jubilee with kids.

Physical Events

The TCS London Marathon, The Big Half and Swim Serpentine are all coming back in 2022.

In addition to this, the Vitality London 10,000 will be returning to its iconic central London course with a new date, and a new-look RideLondon is on its way. Here is some more information:

TCS London Marathon 2022


We are extremely pleased to announce that our marathon place from 2021 has been rolled over to this year.

We currently have one charity place left for the virtual London marathon. If this is something you have always seriously considered, been passionate about, and are confident that you can raise much needed funds and awareness for Ectodermal Dysplasia, please get in touch – danielle@edsociety.co.uk

The Big Half 2022


The big half will return to the streets of London on Sunday 4th September 2022. Charity entries are currently open so please get in touch if this is of interest to you.

Swim for Charity


Taking on one of the Swim Serpentine distances is a great way to fundraise for a cause close to your heart. Half a mile, one mile, two miles or the super six? The date for 2022 is yet to be confirmed.

Vitality Events


Vitality Westminster Mile – want to fundraise but not a big runner? The Vitality mile is perfect to ease yourself into. The Vitality Westminster Mile, which starts on The Mall, goes around St James’s Park and finishes in front of Buckingham Palace, will take place on Sunday 1st May 2022.

The Vitality London 10,000 is a 10k event that focuses on the benefits of running for your head and your heart. If you’d like to experience the excitement of a 10K mass participation event that’s fun and achievable for beginners and more seasoned runners alike, the Vitality London 10,000 is for you! Taking place on Monday 2nd May 2022, this celebratory event is not to be missed – and you can register your place now!

What events are in your local area?

Do you have any events in your local area you could fundraise for ED at? Let us know.

Maybe you have your own fundraising story to tell, and help inspire others to get involved – share with us today