We are thrilled to announce that our beloved ED Christmas party is making a triumphant return this year! Mark your calendars for Saturday, 7th December 2024, as we gather once again to celebrate at the stunning Hatherley Manor in Cheltenham. Last year’s celebration was a tremendous success, filled with joy and camaraderie as we gathered together. We […]

Official Sponsors of ICED25 Simon Lees-Jones, ED Society UK Member European Donor  Full Programme Now Availiable HERE What is ICED? In 2004, the UK hosted the ECTO4, a significant milestone as one of the initial International Conferences on ectodermal dysplasia. These conferences have since become a recurring event in Europe, taking place every three years. […]

We’re excited to invite you to a very special event – our Family Day at the ICED25 Conference! The full programme has now been finalised, and you can view what is happeneing HERE. What is ICED? ICED25 will highlight excellence within the rare disease field, and prompt discussion, reflection, and action. We collaborate with other Ectodermal Dysplasia […]