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File Category Date
Summer 2018 newsletter General, Members Stories, Newsletters, Support Sep, 2018
How to keep cool – which products are best Cooling, Overheating, Sweating, Tips Sep, 2018
Membership-form 2019 website Forms Sep, 2018
Genetic Carriers – how to tell your partner Genetics, Support, Tips Aug, 2018
Alternatives to Dental Implants Dental, Teeth Aug, 2018
IP – a mothers story Incontinentia Pigmenti, Members Stories, Stories Aug, 2018
IP – small, but not significant Incontinentia Pigmenti, Members Stories, Newsletters, Stories, Support Aug, 2018
Proud of the Society General, Stories Aug, 2018
IP My Story Incontinentia Pigmenti, Members Stories Aug, 2018
The EYE in IP ED Syndromes, Eyes, Incontinentia Pigmenti Aug, 2018
University campus doctors Education, Stories Aug, 2018
The psychosocial impact of living with visible difference as a teenager Bullying, Research, Support Aug, 2018
Working Together for Rare Diseases Medical, Research, Skin, Stories, Support Aug, 2018
Growing up with ED Bullying, Members Stories, Stories Aug, 2018
School boy who overheats in PE takes up Snowboarding Children, Members Stories, Overheating Aug, 2018
ED and Sport Children, Members Stories, Schools Aug, 2018
ED Doesn’t Stop Me Members Stories, Stories Aug, 2018
Useful Advice for School Children, Education, Schools, Stories Aug, 2018
He never sheds a tear Eyes, Members Stories Aug, 2018
Performing with ED – George Keeble Children, Members Stories Aug, 2018
My dental experience Dental, Members Stories, Teeth Aug, 2018
Explaining ED to your child Children, Stories Aug, 2018
ED – No sweat – A hot topic H.E.D, Research, Sweating Aug, 2018
School Care Plan 300618 Education, Forms, Overheating, Schools Jul, 2018
Claiming Benefits Benefits Jun, 2018