Archives: Articles

	File	Category	Date
	Xmas Party Form 2022 Xmas Party Form 2022	Children, Fundraising, Support	Jul, 2022
	Females with Ectodermal Dysplasia Angus June 2022	Diagnosis, ED Syndromes, Research, Support, Symptoms, XLHed	Jun, 2022
	Health care plan 301021	Children, Cooling, Education, Forms, Schools, Support, Temperature	Jun, 2022
	Information for Families UK 2022	Babies, Medical, Research, XLHed	Mar, 2022
	Patient Invitiation Letter UK 2022	Babies, Medical, Research, XLHed	Mar, 2022
	EDELIFE Information Leaflet UK 2022	Babies, Medical, Research, XLHed	Mar, 2022
	EEC, My Bladder and Me Julia Errington	AEC/EEC, ED Syndromes, Medical, Members Stories, Stories	Jan, 2022
	DLA Diary	Benefits, Children, Support	Jan, 2022
	EDELIFE Parent Working Group_invitation 2021	Children, ED Syndromes, Growth & Development, H.E.D, Medical, Research, Symptoms, XLHed	Nov, 2021
		General, Newsletters, Support	Nov, 2021
	FROM A PARALYMPIAN’S PERSPECTIVE Mel davis	AEC/EEC, Members Stories, Sport, Stories	Aug, 2021
	The Dentist’s Tale – J Hobkirk	Dental, Newsletters, Stories, Teeth	Aug, 2021
	The History of the ED society	Babies, Children, Dental, Members Stories, Newsletters, Stories	Jun, 2021
	Clive Bentley London Marathon 2018	Fundraising, Members Stories, Newsletters, Stories	Jun, 2021
	London Marathon April 2017 Laura Page Marathon 2017	Fundraising, Members Stories, Newsletters, Stories	Jun, 2021
	Does having a dry mouth make swallowing tricky	Mouth, Saliva, Support, Throat, Tips	May, 2021
	Hannah Harpin Daily Mail 2021	ED and other conditions, ED Syndromes, Hair, Members Stories, Stories, Support	Apr, 2021
	Our Journey – Chantelle Epton	Children, Diagnosis, Members Stories, Newsletters, Stories, Support	Apr, 2021
	Return-School-Guidance-2021	Children, Cooling, Education, Newsletters, Overheating, Schools, Support	Apr, 2021
	Carers Letter for Covid Vaccine March 2021	Diagnosis, ED and other conditions, Medical, Overheating, Support	Mar, 2021
	ED and High Risk from Coronavirus letter	Infections, Support, Temperature	Jan, 2021
	You are doing enough. You are loving your kids and supporting them through a difficult time	Children, Education, General, Newsletters, Schools, Stories, Support	Jan, 2021
	Zoe McDonald Life in Lockdown article 2020	Children, General, Members Stories, Newsletters, Stories, Support	Nov, 2020
	October Update 2020	Bullying, Genetics, Members Stories, Newsletters, Research, Schools, Stories, Support	Nov, 2020
	Membership-form 2021 website	Forms, Membership	Sep, 2020