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File Category Date
This feels like a little family to me – we are not alone (Kaya) Leighton Babies, Children, Diagnosis, H.E.D, Members Stories, Overheating, Stories, Support, Symptoms Mar, 2024
They stopped me from being put into a shelter (Phoebe) Children, Members Stories, Stories, Support Mar, 2024
Strangers a few years ago – now a rock for my family (Rachael) Rachael and Family Children, Cooling, Diagnosis, Genetics, Members Stories, Overheating, Stories, Support Mar, 2024
My son will now have his dental needs fulfilled for life (Jen) Harrison Children, Dental, Members Stories, Stories, Support, Teeth Mar, 2024
Hannah Venice Film Festival Sept 2023 Newsletters, Stories, Support Nov, 2023
The Yearly Edlines 2023 Members Stories, Newsletters, Stories, Support Nov, 2023
Student Information Card Children, Education, Schools, Support Apr, 2023
Why EDELIFE is for Boys 2023 Babies, Children, Genetics, H.E.D, Medical, Newsletters, Research, Symptoms, XLHed Mar, 2023
Claiming Benefits Benefits, Children, Support Mar, 2023
Harley Browne Meet Harley Children, Diagnosis, ED Syndromes, Members Stories, Newsletters, Stories, Support Mar, 2023
New Trustee Nomination Form 2023 Newsletters Mar, 2023
Support-Fund-Application-Form 2023 Benefits, Forms, Support Mar, 2023
Yearly EDlines 2022 Newsletters, Stories, Support Nov, 2022
Xmas Party Form 2022 Xmas Party Form 2022 Xmas Party Form 2022 Children, Fundraising, Support Jul, 2022
Females with Ectodermal Dysplasia Angus June 2022 Diagnosis, ED Syndromes, Research, Support, Symptoms, XLHed Jun, 2022
Health care plan 301021 Children, Cooling, Education, Forms, Schools, Support, Temperature Jun, 2022
Information for Families UK 2022 Babies, Medical, Research, XLHed Mar, 2022
Patient Invitiation Letter UK 2022 Babies, Medical, Research, XLHed Mar, 2022
EDELIFE Information Leaflet UK 2022 Babies, Medical, Research, XLHed Mar, 2022
EEC, My Bladder and Me Julia Errington AEC/EEC, ED Syndromes, Medical, Members Stories, Stories Jan, 2022
DLA Diary Benefits, Children, Support Jan, 2022
EDELIFE Parent Working Group_invitation 2021 Children, ED Syndromes, Growth & Development, H.E.D, Medical, Research, Symptoms, XLHed Nov, 2021
General, Newsletters, Support Nov, 2021
FROM A PARALYMPIAN’S PERSPECTIVE Mel davis AEC/EEC, Members Stories, Sport, Stories Aug, 2021
The Dentist’s Tale – J Hobkirk Dental, Newsletters, Stories, Teeth Aug, 2021