ED Society Annual General Meeting (AGM.)
Date: Saturday 9th May 2026
Location: Online (via Zoom)
The ED Society’s AGM is an important opportunity to reflect on the past year, share updates on our work, discuss future plans, and continue strengthening our support for individuals and families affected by Ectodermal Dysplasia.
Become a Trustee – We Need Your Support
We are currently seeking new Trustees to join our Board.
As a Trustee, you will:
✅ Attend atleast two out of the four meetings per year (held on Saturdays online.)
✅ Provide input where needed, such as reviewing documents, responding to occasional queries, or sharing ideas.
✅ Support the ongoing work and direction of the Society.
Do you have a specific skill set or know someone who does that could benefit the Society? We would love to hear from you!
Get Involved
The ED Society relies on donations, fundraising, and the commitment of dedicated individuals. Your support plays a vital role in helping us continue our work.
If you are interested in becoming a Trustee or would like to find out more, please:
- Email info@edsociety.co.uk or
- Complete a Trustee Nomination Form


