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Family Day at ICED25
We’re excited to invite you to a very special event – our Family Day at the ICED25 Conference! The full programme has now been finalised, and you can view what is happeneing HERE.
What is ICED?
ICED25 will highlight excellence within the rare disease field, and prompt discussion, reflection, and action. We collaborate with other Ectodermal Dysplasia organisations worldwide dedicated to improving the health and well-being of people affected by the Ectodermal Dysplasias.
“Our vision: a world in which no one faces their rare disease journey alone.”
What to Expect:
This day is exclusively designed for families and parents of individuals affected by ectodermal dysplasia, and offers a unique opportunity to connect with top medical professionals, get your questions answered, and be part of a supportive community.
Beyond the educational aspect, it’s also a wonderful opportunity to connect and build meaningful friendships with others who share your journey.
“Our team prides itself on delivering our vision that makes everyone feel welcome and heard.”
On the day:
- Engage with Experts: The Medical Advisory Board (MAB) and invited medical specialists will be on hand to provide invaluable insights and answer all your questions about ED.
- Interactive Q&A Sessions: Gain deeper understanding and perspective on ectodermal dysplasia from experts in the field.
- Build Connections: Meet other families who share your journey and build meaningful relationships.
- Refreshments Provided: Enjoy tea, coffee, pastries, and a buffet lunch during the day.
Event Details:
- Who Can Attend: Family members aged 16 and above (please note, there are no childcare facilities available)
- Cost: £30 per adult (to include refreshments, lunch, and access to all the sessions.)
- Date & Time: Thursday 12th June 2025, 9am – 4pm
- Location: Austin Court, 80 Cambridge St, Birmingham, B1 2NP
To make the most of the presentations, please send us any questions you have in advance. Please email Diana Perry.
