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Winners of ‘Excellence in Writing’

The Ectodermal Dysplasia Society are excited to share with you our Press Release relating to the Communiqué Award ceremony held on the 4th July 2019 at the Grosvenor House Hotel, Park Lane, London. The Society were the winners of the excellence in writing for their book “Everybody’s Different”.

Communique Awards in London, 4th July 2019

The Communiqué judges commented…

“Everybody’s Different was a slam dunk clear winner!  It was inclusive, easy to use and written with great empathy for children with this rare condition. The visuals are appealing and help the storytelling and, crucially, the science is accurate. It’s easy to imagine this being used as a teaching aid in schools or with a parent. Simple but vivid explanations will help increase understanding and empathy among children’s classmates, and potentially reduce bullying.”

Diana Perry alongside the Envision Pharma Group at the Communique Awards in London on 4th July 2019

The ED Society’s headquarters are based in Cheltenham and support families affected by Ectodermal Dysplasia throughout the whole of the UK and internationally.

“For many years there has been one phrase that I have muttered to myself – ‘The greatest pleasure in life is doing what people say you cannot do’. I would like to see more people relating to this phrase, and the ED Society’s work and effort is exactly the way forward to opening people’s eyes and transforming their perspectives. Those who consider themselves as disadvantaged, should instead recognise themselves as unique.”

Those words of wisdom come from Francesca Jones, an insightful 18-year-old who continued tearing down barriers at the 2019 Wimbledon qualifying event.

Francesca Jones

Francesca was born with the rare genetic condition Ectrodactyly Ectodermal Dysplasia (EEC), which affects the digits on both the hands and feet.  Having undergone several operations, she competes with eight fingers and seven toes.

“The book the ED Society have written is precisely what kids need to refer to at a young age – reminding any child they should dream big and live the life they desire. I can only support this piece of work and encourage more”. 

We are very fortunate and delighted to have such Celebrity endorsement and support for our book from Francesca.