Stay up to date with the ED Society’s latest news and events. If you would like to share a story or news item with us, please send to email@example.com
Stay Informed and Stay Safe
For all the latest information and updates regarding Ectodermal Dysplasia and the coronavrius pandemic, please visit our dedicated Covid Updates page.
Whether it is tips, information, advice or if you just need someone to talk to, remember we are here to listen and support you through this time.
Charity Update March 2020
Our new Charity update for March is now available to view here.
Previously we have sent out 4 newsletters during the year, but have now decided to only keep our annual October newsletter which is posted and send out regular update mailings. To do this we need to make sure everyone understands the importance of completing the contact details form to enable us to include you in such mailings. You can chose to opt out at any time. We would like to make you aware that it is essential to add firstname.lastname@example.org to your email address book to stop these from entering your junk folder.