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Stay Informed and Stay Safe

For all the latest information and updates regarding Ectodermal Dysplasia and the coronavrius pandemic, please visit our dedicated Covid Updates page.

Whether it is tips, information, advice or you just need someone to talk to, we are here to listen and support you through this time.

Covid Guide

Charity Update March 2020

Our Charity update for March is now available to view here. Previously we have sent out 4 newsletters during the year, but have now decided to only keep our annual October newsletter which is posted and send out regular update mailings. To do this we need to make sure everyone understands the importance of completing the contact details form to enable us to include you in such mailings. You can chose to opt out at any time. We would like to make you aware that it is essential to add info@edsociety.co.uk to your email address book to stop these from entering your junk folder.

Welcome June

It’s ED awareness month 2020. Find out more and get involved here

awareness logo

ED May Bulletin

The latest ED bulletin is here.

If you have not received it by email please remember to check your junk email folder.

If you would like to sign up to receive our Charity Bulletins and other such mailings from us, please remember to complete and return the contact form or sign up on the website.

We are very fortunate to have members who wish to share their stories and ED journeys with us, either by writing articles for our newsletters or writing their own blogs!  Head over to our Parents page to have a read and hopefully find some extra reassurance and support that you are not alone!