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March 2020

Our new Charity update for March is now available to view here.

Previously we have sent out 4 newsletters during the year, but have now decided to only keep our annual October newsletter and send out regular update mailings. To do this we need to make sure everyone understands the importance of completing the contact details form to enable us to include you in such mailings.

Coronavirus and ED

With the news of the coronavirus and the emphasis on hand washing, we know this is going to have an adverse effect on many who are affected by ED and dry skin.

We have received a number of enquiries about the advice on frequent handwashing and use of hand sanitisers to reduce coronavirus risk, and have put together some need to know information and advice here.

Latest FundraisingDecember 2019

Fundraising that has taken place over the last few months amounts to £8733.13.  Wow…..what a great way to end the year!!

Find out more here and how you can get involved

Lizzie Taylor in the Bournemouth Junior 2k Marathon in October 2019

We have done it again…..

CEO Diana Perry alongside Envision Pharma Group

On Tuesday 10th September, Diana attended the 2019 BMA Patient Information Awards in London.  Our children’s book, Everybody’s Different was not only awarded “highly commended”, but it was also entered into the Special Awards section.  We were runner up for “Equality, Diversity, and Inclusion” Find out more about the award and what the judges said here.

We are very fortunate to have members who wish to share their stories and ED journeys with us, either by writing articles for our newsletters or writing their own blogs!  Head over to our Parents page to have a read and hopefully find some extra reassurance and support that you are not alone!