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# The ED Society

a charity dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED)

## Sitemaps

- [XML Sitemap](https://edsociety.co.uk/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [News](https://edsociety.co.uk/latest-news/)
- [Rare diseases: we need to think about climate change too](https://edsociety.co.uk/rare-diseases-we-need-to-think-about-climate-change-too/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” width=”100%” custom_padding=”91px|0px|35px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”3px|0px|108px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ text_orientation=”center” background_layout=”dark” custom_margin=”17px|||||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” text_font=”–et_global_body_font||||||||” sticky_enabled=”0″]CEO and Founder Diana Featured in The Lancet Neurology We are excited to share that our CEO and Founder, Diana, has We are super excited to see our CEO & Founder Diana Perry's name pop up in the september issue of The Lancet - take a moment to have a read.
- [PRESS RELEASE: Hidden Heat Risk – Charity Warns Summer Temperatures Can Be Life-Threatening for People with Rare Genetic Condition ](https://edsociety.co.uk/17166-2/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” width=”100%” min_height=”982.2px” custom_margin=”-149px|||||” custom_padding=”107px|0px|107px||true|” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” min_height=”422.4px” custom_padding=”3px|0px|1px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ link_font=”|–et_global_heading_font_weight|on||||||” link_text_color=”#FF7C02″ header_3_text_color=”#FF7C02″ header_3_line_height=”1.3em” header_4_text_color=”gcid-heading-color” text_orientation=”center” background_layout=”dark” custom_margin=”17px|||||” custom_padding=”||0px|||” global_colors_info=”{%22gcid-heading-color%22:%91%22header_4_text_color%22%93}”]ED Society Issues Heatwave Warning for People with Ectodermal Dysplasia The ED Society has issued a press
- ["Don't let her continue playing tennis"](https://edsociety.co.uk/dont-let-her-continue-playing-tennis/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” width=”100%” min_height=”982.2px” custom_margin=”-149px|||||” custom_padding=”80px|0px|80px||true|” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” min_height=”422.4px” custom_padding=”3px|0px|1px|||” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ link_font=”|–et_global_heading_font_weight|on||||||” link_text_color=”#FF7C02″ header_3_text_color=”#FF7C02″ header_3_line_height=”1.3em” header_4_text_color=”gcid-heading-color” text_orientation=”center” background_layout=”dark” custom_margin=”17px|||||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-heading-color%22:%91%22header_4_text_color%22%93}” theme_builder_area=”post_content” sticky_enabled=”0″]“Don’t let her continue playing tennis.” Those were the words once
- [The ED Society attend the annual RCPCH Conference](https://edsociety.co.uk/the-ed-society-attend-the-annual-rcpch-conference/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” width=”100%” min_height=”982.2px” custom_margin=”-149px|||||” custom_padding=”80px|0px|80px||true|” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” min_height=”1018.4px” custom_padding=”3px|0px|0px|||” global_colors_info=”{}” column_structure=”1_2,1_2″ theme_builder_area=”post_content”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ link_font=”|–et_global_heading_font_weight|on||||||” link_text_color=”#FF7C02″ header_3_text_color=”#FF7C02″ header_3_line_height=”1.3em” header_4_text_color=”gcid-heading-color” text_orientation=”center” background_layout=”dark” custom_margin=”17px|||||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-heading-color%22:%91%22header_4_text_color%22%93}” theme_builder_area=”post_content” sticky_enabled=”0″]This week, Diana and Danielle are attending the Royal College
- [New NHS Support Network for Ectodermal Dysplasia Patients](https://edsociety.co.uk/rdcn-for-ectodermal-dysplasia/) - We’re pleased to share there is now a dedicated NHS Rare Disease Collaborative Network (RDCN) for individuals with Ectodermal Dysplasia & related conditions
- [Double Marathon Success – Thank You, Calum!](https://edsociety.co.uk/double-marathon-success-thank-you-calum/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” width=”100%” min_height=”982.2px” custom_margin=”-177px|||||” custom_padding=”85px|0px|98px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” min_height=”1085.4px” custom_padding=”3px|0px|0px|||” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″][et_pb_column type=”4_4″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2026/04/7b7089af-4c29-469c-b5b4-e835c58142ea-scaled.jpg” alt=”Side on view of Calum running in the london marathon wearing an ED society logo tshirt” title_text=”7b7089af-4c29-469c-b5b4-e835c58142ea” show_in_lightbox=”on” align=”center” _builder_version=”4.27.6″ _module_preset=”default” width=”72%” module_alignment=”center”
- [ED Society Patron Fran Jones follows up her career-best win by battling through to ASB Classic quarter-finals in Auckland](https://edsociety.co.uk/fran-jones-follows-up-career-best-win/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” width=”100%” min_height=”982.2px” custom_margin=”-177px|||||” custom_padding=”85px|0px|78px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” min_height=”1085.4px” custom_padding=”3px|0px|5px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2026/01/ASB-Aukland-Jan-2026.png” alt=”blue flyer advertising ICEd25 conference” title_text=”ASB Aukland Jan 2026″ show_in_lightbox=”on” align=”center” _builder_version=”4.27.5″ _module_preset=”default” width=”72%” module_alignment=”center” min_height=”298.8px” custom_padding=”18px||0px|||” global_colors_info=”{}”][/et_pb_image][et_pb_text _builder_version=”4.27.5″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ link_font=”|–et_global_heading_font_weight|on||||||” link_text_color=”#FF7C02″ header_3_text_color=”#FF7C02″ header_3_line_height=”1.3em” header_4_text_color=”gcid-heading-color” text_orientation=”center” background_layout=”dark”
- [The Yearly ED-Lines 2025](https://edsociety.co.uk/15276-2/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.27.4″ _module_preset=”default” background_enable_color=”off” width=”100%” custom_margin=”-98px|||||” custom_padding=”85px|0px|78px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”3px|0px|5px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ link_text_color=”#FF7C02″ header_2_text_color=”#0C54A0″ header_3_text_color=”#FF7C02″ header_4_font=”–et_global_body_font||||||||” header_4_text_color=”gcid-secondary-color” header_4_font_size=”20px” text_orientation=”center” background_layout=”dark” custom_margin=”17px|||||” custom_padding=”||0px|||” global_colors_info=”{%22gcid-secondary-color%22:%91%22header_4_text_color%22%93}”] The Yearly ED-Lines 2025 [/et_pb_text][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2025/10/Kiltwalk.jpg” alt=”blue flyer advertising ICEd25 conference” title_text=”Kiltwalk” url=”https://online.flippingbook.com/view/543982698/” url_new_window=”on” align=”center” _builder_version=”4.27.4″ _module_preset=”default”
- [Thank you BAD](https://edsociety.co.uk/thank-you-bad/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” width=”100%” custom_padding=”91px|0px|35px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row make_equal=”on” _builder_version=”4.27.0″ _module_preset=”default” custom_padding=”3px|0px|5px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”17px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] Thank You BAD [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”3px|0px|108px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”17px|||||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” We are thrilled to announce our new website has been partially funded by BAD
- [The Visible Difference Parenting Toolkit](https://edsociety.co.uk/the-visible-difference-parenting-toolkit/) - This an e-book designed to help parents and carers of children with visible differences of any kind. It offers practical advice on how to support your child and take care of your own well-being.
- [Highlights from the 9th International Conference for Ectodermal Dysplasia, June 2025.](https://edsociety.co.uk/highlights-from-the-9th-international-conference-for-ectodermal-dysplasia-june-2025/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.27.4″ _module_preset=”default” background_enable_color=”off” width=”100%” custom_margin=”-98px|||||” custom_padding=”85px|0px|78px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default”][et_pb_column _builder_version=”4.27.4″ _module_preset=”default” type=”4_4″][et_pb_heading title=”Families, clinicians, and researchers came together to share progress and hope.” _builder_version=”4.27.4″ _module_preset=”default” title_font_size=”26px” title_letter_spacing=”-1px” hover_enabled=”0″ sticky_enabled=”0″ custom_margin=”14px|||||”][/et_pb_heading][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”3px|0px|5px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2025/11/IMG_7649-scaled.jpg” alt=”blue flyer advertising ICEd25 conference” title_text=”IMG_7649″
- [The Student Voice Prize – Beacon for Rare Diseases](https://edsociety.co.uk/14158-2/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” width=”100%” custom_padding=”118px|0px|164px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”3px|0px|5px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ header_3_text_color=”#FF7C02″ header_4_text_color=”gcid-heading-color” text_orientation=”center” background_layout=”dark” custom_margin=”17px|||||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-heading-color%22:%91%22header_4_text_color%22%93}” sticky_enabled=”0″] The Student Voice Prize – Beacon for Rare Diseases The Student Voice Prize is an annual, international essay competition that raises
- [Become a Friend of the ED Society](https://edsociety.co.uk/become-a-friend-of-the-ed-society/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” width=”100%” custom_padding=”91px|0px|35px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row make_equal=”on” _builder_version=”4.27.0″ _module_preset=”default” custom_padding=”3px|0px|5px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”17px|||||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Become a Friend of the ED Society [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”3px|0px|108px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″
- [xlhed-clinical-trials-uk](https://edsociety.co.uk/xlhed-clinical-trials-uk/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”84px||86px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||1px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] XLHED Clinical Trials in the UK [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” min_height=”474px” custom_padding=”0px||0px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]

## Pages

- [Ectodermal Dysplasia Society](https://edsociety.co.uk/) - We are a dedicated UK charity committed to supporting families and individuals affected by the rare genetic condition, Ectodermal Dysplasia (ED).
- [Why Our Christmas Party Means So Much](https://edsociety.co.uk/why-our-christmas-party-means-so-much/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ min_height=”1199.6px” custom_margin=”-34px|||||” custom_padding=”46px|0px|0px|||” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”-47px|auto||auto||” custom_padding=”7px||0px|||” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_heading title=”Why Our Christmas Party Means So Much” _builder_version=”4.27.6″ _module_preset=”default” title_text_align=”left” title_text_color=”#FF7C02″ title_font_size=”26px” min_height=”45px” custom_margin=”||1px|||” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″][/et_pb_heading][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”7px||6px|||” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font=”–et_global_body_font||||||||” text_text_color=”#0C54A0″ text_font_size=”15px”
- [Guidance for Schools During Periods of Extreme Heat](https://edsociety.co.uk/support/temperature-control/guidance-for-schools-during-periods-of-extreme-heat/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” width=”100%” min_height=”982.2px” custom_margin=”-149px|||||” custom_padding=”107px|0px|107px||true|” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” min_height=”422.4px” custom_padding=”3px|0px|0px|||” global_colors_info=”{}” column_structure=”1_2,1_2″ theme_builder_area=”post_content”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ link_font=”|–et_global_heading_font_weight|on||||||” link_text_color=”#FF7C02″ header_3_text_color=”#FF7C02″ header_3_line_height=”1.3em” header_4_text_color=”gcid-heading-color” text_orientation=”center” background_layout=”dark” custom_margin=”0px|||||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-heading-color%22:%91%22header_4_text_color%22%93}” theme_builder_area=”post_content” sticky_enabled=”0″]Guidance for Schools During Periods of Extreme Heat For many
- [Cooling](https://edsociety.co.uk/support/temperature-control/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”91px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Cooling [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Another common feature of Ectodermal Dysplasia is impaired temperature control. Individuals affected by Ectodermal Dysplasia have a reduced
- [Hidden Heat Risks: Why Hot Weather Can Be Dangerous for People with Ectodermal Dysplasia](https://edsociety.co.uk/support/temperature-control/hidden-heat-risks-why-hot-weather-can-be-dangerous-for-people-with-ectodermal-dysplasia/) - [et_pb_section fb_built=”1″ admin_label=”Header” _builder_version=”4.16″ background_color=”#f7f9f9″ parallax=”on” custom_padding=”20px||2px|||” collapsed=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.6″ min_height=”392.7px” custom_margin=”-15px|auto|-21px|auto||” custom_padding=”7px||0px|0px||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”80px||40px|” custom_padding_tablet=”0px||” custom_padding_phone=”0px||” custom_padding_last_edited=”on|tablet” global_colors_info=”{}” padding_tablet=”0px||” padding_last_edited=”on|tablet” custom_padding__hover=”|||” padding_phone=”0px||”][et_pb_text _builder_version=”4.27.6″ text_font=”–et_global_body_font||||||||” text_text_color=”#0C54A0″ text_font_size=”15px” text_line_height=”2em” header_font=”Faustina||||||||” header_text_color=”#0e7162″ header_font_size=”60px” header_line_height=”1.3em” header_2_font=”–et_global_body_font|600|||||||” header_2_text_color=”#0C54A0″ header_2_font_size=”22px” header_2_line_height=”1.4em” header_4_font=”–et_global_body_font|600|||||||” header_4_text_color=”#FF7C02″ header_4_font_size=”16px” header_4_line_height=”1.4em” min_height=”183px” custom_margin=”-83px|||||” custom_padding=”0px|||||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] ED Society Calls for Greater Awareness
- [ED Community Stories](https://edsociety.co.uk/support/ed-community-stories/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”94px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” text_font=”–et_global_body_font||||||||” text_text_color=”#0C54A0″ text_font_size=”15px” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Real Stories from Our ED Community Every person and family affected by Ectodermal Dysplasia has their own unique story to tell. Here, members of our
- [Waffle and Ezra: More Than Just a Dog](https://edsociety.co.uk/support/ed-community-stories/waffle-and-ezra-more-than-just-a-dog/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ min_height=”1199.6px” custom_margin=”-34px|||||” custom_padding=”46px|0px|0px|||” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”-47px|auto||auto||” custom_padding=”7px||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_heading title=”Waffle and Ezra: More Than Just a Dog” _builder_version=”4.27.6″ _module_preset=”default” title_text_align=”left” title_text_color=”#FF7C02″ title_font_size=”26px” min_height=”45px” custom_margin=”||1px|||” global_colors_info=”{}”][/et_pb_heading][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”7px||6px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font=”–et_global_body_font||||||||” text_text_color=”#0C54A0″ text_font_size=”15px” header_4_font=”|600|||||||” header_4_text_color=”#0C54A0″ custom_margin=”-9px|||||” global_colors_info=”{}”] A story of
- [Dancing Through Every Hurdle: Lola’s Dream Journey to the World Stage](https://edsociety.co.uk/support/ed-community-stories/dancing-through-every-hurdle-lolas-dream-journey-to-the-world-stage/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ min_height=”1199.6px” custom_padding=”|0px|0px|||” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”-47px|auto||auto||” custom_padding=”7px||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_heading title=”Dancing Through Every Hurdle: Lola’s Dream Journey to the World Stage” _builder_version=”4.27.4″ _module_preset=”default” title_text_align=”left” title_text_color=”#FF7C02″ title_font_size=”28px” min_height=”45px” custom_margin=”||1px|||” global_colors_info=”{}”][/et_pb_heading][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.4″ _module_preset=”default” min_height=”376.4px” custom_padding=”7px||0px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2025/07/Lola2.jpg” alt=”black and white image of Lola sat Lola is talented 13-year-old dancer with a passion for performing. She recently auditioned for the Dance World Cup 2025 and is representing Scotland in the finals in Spain.
- [The Power of Coming Together as an ED Community](https://edsociety.co.uk/the-power-of-coming-together-as-an-ed-community/) - [et_pb_section fb_built=”1″ _builder_version=”4.27.6″ min_height=”1200.1px” custom_margin=”||-108px|||” custom_padding=”0px||0px|||” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.0″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” min_height=”251px” custom_padding=”0px||4px|||” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ text_font=”||||||||” text_text_color=”#002B99″ text_line_height=”1.4em” header_3_text_color=”#FF7C02″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” background_layout=”dark” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” text_font_size=”16px” sticky_enabled=”0″] Why Our Christmas Party Means So Much Every year, the ED Society hosts our annual Christmas Party for children,
- [Keeping Cool in Exams](https://edsociety.co.uk/support/education/keeping-cool-in-exams/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”95px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Keeping Cool in Exams [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] As spring and summer approach many parents begin to worry about their child overheating
- [Are You Off to University or Higher Education](https://edsociety.co.uk/support/education/are-you-off-to-university-or-higher-education/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”95px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″] Are You Off to University or Higher Education? By Diana Perry, CEO. [/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content”
- [AGM](https://edsociety.co.uk/annual-general-meeting/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”724.6px” custom_margin=”||34px|||” custom_padding=”99px||96px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ header_3_text_color=”#FF7C02″ custom_margin=”||10px||false|false” global_colors_info=”{}”] ED Society Annual General Meeting (AGM.) [/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_3_font=”–et_global_body_font||||||||” header_3_text_color=”gcid-heading-color” header_4_text_color=”#FF7C02″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-heading-color%22:%91%22header_3_text_color%22%93}” sticky_enabled=”0″] Date: Saturday 9th May 2026Location:
- [Rare Disease Collaborative Network for Ectodermal Dysplasia](https://edsociety.co.uk/rare-disease-collaborative-network-for-ectodermal-dysplasia/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_margin=”-38px|||||” custom_padding=”65px||65px||true|” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”7px||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” text_text_color=”gcid-f743be1f-46bf-4685-bc55-7e8b347eb98d” text_font_size=”16px” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”39px||10px||false|false” global_colors_info=”{%22gcid-f743be1f-46bf-4685-bc55-7e8b347eb98d%22:%91%22text_text_color%22%93}”] Rare Disease Collaborative Network for Ectodermal Dysplasia We are thrilled to now have a dedicated Rare Disease Collaborative Network (RDCN) for individuals affected by Ectodermal
- [Trustees](https://edsociety.co.uk/about-us/board-of-trustees-2/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_margin=”-34px|||||” custom_padding=”87px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Meet Our Trustees [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] The ED Society is guided by a dedicated Board of Trustees who volunteer their time to
- [Symptoms of ED](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”88px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”7px||96px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Symptoms of ED [/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ link_text_color=”gcid-primary-color” header_3_text_color=”#FF7C02″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-primary-color%22:%91%22link_text_color%22%93}” sticky_enabled=”0″] Ectodermal Dysplasia (ED) affects people in different ways. To be diagnosed with
- [Dentures](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/teeth/dentures/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”93px||44px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}” column_structure=”1_2,1_2″][et_pb_column type=”1_2″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Dentures [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Missing teeth can go unnoticed but may reduce confidence regarding appearance, difficulty speaking and a challenge when
- [Dentures and Children](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/teeth/dentures-and-children-2/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”93px||44px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.5″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″]Dentures and Children[/et_pb_text][et_pb_text _builder_version=”4.27.5″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″] We often get questions from families about dentures for
- [Benefits](https://edsociety.co.uk/support/financial-benefits/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”1330.4px” custom_padding=”92px||0px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2026/03/Benefits.png” title_text=”Benefits” _builder_version=”4.27.5″ _module_preset=”default” max_width=”43%” module_alignment=”center” global_colors_info=”{}”][/et_pb_image][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||-1px||false|false” custom_padding=”||0px|||” global_colors_info=”{}”] Benefits [/et_pb_text][et_pb_text _builder_version=”4.27.5″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_3_text_color=”#FF7C02″ header_4_font=”–et_global_body_font||||||||” header_4_text_color=”#FF7C02″ header_4_line_height=”1.5em” text_orientation=”center” background_layout=”dark” custom_margin=”||-10px|||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] It’s important to
- [Support](https://edsociety.co.uk/support/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”85px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Support [/et_pb_text][et_pb_text _builder_version=”4.27.5″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] The ED Society is here to support individuals and families affected by Ectodermal Dysplasia in every
- [Disabled Students' Allowance (DSA)](https://edsociety.co.uk/support/financial-benefits/diasbled-student-allowance/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”96px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Disabled Students’ Allowance (DSA) [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”1px||0px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.5″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” header_4_text_color=”#FF7C02″ header_4_line_height=”3.2em” sticky_enabled=”0″] Disabled
- [Carers Allowance](https://edsociety.co.uk/support/financial-benefits/carers-allowance/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”93px||77px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Carers Allowance [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”0px||0px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Who qualifies for Carer’s Allowance? Carer’s Allowance
- [Personal Independence Payment (PIP)](https://edsociety.co.uk/support/financial-benefits/pip/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”89px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Personal Independence Payment [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.25.2″ _module_preset=”default” custom_padding=”0px|||||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.25.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Personal Independence Payment (PIP) is a benefit to
- [Disability Living Allowance (DLA)](https://edsociety.co.uk/support/financial-benefits/disability-living-allowance/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”94px||20px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Disability Living Allowance (DLA) [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”3px||0px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Any child who has a
- [](https://edsociety.co.uk/get-involved/fundraising/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”90px||90px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}” custom_margin=”||26px|||”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Fundraising for Ectodermal Dysplasia [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Make a difference in your own way. Doing your own fundraising is your chance to
- [Our Mission](https://edsociety.co.uk/about-us/our-mission/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”98px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Our Mission [/et_pb_text][et_pb_text _builder_version=”4.27.5″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] The ED Society’s mission is to increase understanding and awareness of the Ectodermal Dysplasias, and to
- [What is Ectodermal Dysplasia?](https://edsociety.co.uk/what-is-ed/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”94px||36px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.26.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” custom_padding=”||0px|||” global_colors_info=”{}”] What is ED? [/et_pb_text][et_pb_text _builder_version=”4.27.5″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_text_color=”gcid-f743be1f-46bf-4685-bc55-7e8b347eb98d” text_orientation=”center” background_layout=”dark” custom_margin=”-12px||2px|||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-f743be1f-46bf-4685-bc55-7e8b347eb98d%22:%91%22header_text_color%22%93}” sticky_enabled=”0″] Ectodermal dysplasia is not a single disorder, but a group of closely
- [Medical Advisory Board](https://edsociety.co.uk/about-us/medical-advisory-board-2/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”105px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_3_text_color=”#0C54A0″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Meet the ED Society’s Medical Advisory Board We are proud to work with a highly respected Medical Advisory Board, made up of leading experts who generously support
- [Ectodermal Dysplasia Awareness Month - February 2026](https://edsociety.co.uk/get-involved/fundraising/ectodermal-dysplasia-month/) - February is recognised globally as ED awareness month, a time where we can all come together to shine a light on Ectodermal Dysplasia.
- [Parents](https://edsociety.co.uk/support/parents/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”89px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Parents and Carers [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”1px||2px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Being a parent and caring for
- [Newly Diagnosed](https://edsociety.co.uk/support/newly-diagnosed/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”88px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Newly Diagnosed [/et_pb_text][et_pb_text _builder_version=”4.27.5″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ link_text_color=”#FF7C02″ text_orientation=”center” background_layout=”dark” custom_margin=”||-13px|||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] If you, your loved one or someone you know has been diagnosed with Ectodermal
- [Meet the Team](https://edsociety.co.uk/about-us/meet-the-team-2/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_margin=”-27px|||||” custom_padding=”102px||119px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||49px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]Meet The ED Team[/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” disabled_on=”on|on|off” _builder_version=”4.27.0″ _module_preset=”default” min_height=”711.7px” custom_padding=”64px|||||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][ba_advanced_team photo=”https://edsociety.co.uk/wp-content/uploads/2023/04/Diana-Perry-300×280.jpg” use_lightbox=”on” member_name=”Diana Perry” job_title=”Chief Executive and Founder” short_bio=” ” use_photo_abs=”on”
- [School Health Care Plan](https://edsociety.co.uk/support/education/school-care-plan/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”89px||80px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] School Health Care Plan [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”0px||3px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”gcid-f743be1f-46bf-4685-bc55-7e8b347eb98d” link_text_color=”gcid-primary-color” header_3_text_color=”#FF7C02″ header_3_font_size=”20px” header_4_text_color=”#0C54A0″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-primary-color%22:%91%22link_text_color%22%93,%22gcid-f743be1f-46bf-4685-bc55-7e8b347eb98d%22:%91%22text_text_color%22%93}”
- [Education](https://edsociety.co.uk/support/education/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”89px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Education [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.25.2″ _module_preset=”default” custom_padding=”0px||12px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ link_text_color=”gcid-primary-color” text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-primary-color%22:%91%22link_text_color%22%93}” sticky_enabled=”0″] The ED Society are happy
- [Other](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/other/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”94px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Other [/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ link_text_color=”gcid-primary-color” header_2_text_color=”#FF7C02″ text_orientation=”center” background_layout=”dark” custom_padding=”||67px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-primary-color%22:%91%22link_text_color%22%93}” sticky_enabled=”0″] Breast and Nipples In some cases abnormalities have been reported, including the absence or under-development
- [Medical](https://edsociety.co.uk/medical-research/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”91px||36px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||2px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Medical [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”||2px|||” custom_padding=”||0px|||” global_colors_info=”{}”] We are committed to bringing about better health care for individuals who have an Ectodermal Dysplasia syndrome
- [International Groups](https://edsociety.co.uk/support/international-groups/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”1608px” custom_padding=”93px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] International Groups [/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] We are more than happy to support individuals and families from around the world. There
- [Latest News](https://edsociety.co.uk/latest-news-2/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”87px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_blog fullwidth=”off” include_categories=”61″ show_author=”off” show_categories=”off” show_pagination=”off” _builder_version=”4.27.4″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” show_more=”on” sticky_enabled=”0″][/et_pb_blog][/et_pb_column][/et_pb_row][/et_pb_section]
- [How genetic disorders are inherited](https://edsociety.co.uk/what-is-ed/genetics/ectodermal-dysplasia-genetics/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”82px||19px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] How genetic disorders are inherited [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Please read the Genetics Introduction section first Genetic disorders are usually caused by alterations
- [Genetics](https://edsociety.co.uk/what-is-ed/genetics/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”95px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Genetics [/et_pb_text][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] DNA (Deoxyribose Nucleic Acid) is our genetic information and contains all the instructions to make a human and for
- [Genetics Testing](https://edsociety.co.uk/what-is-ed/genetics/genetics-testing/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_margin=”||-13px|||” custom_padding=”103px||60px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Genetics Testing [/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_2_text_color=”#002b99″ header_3_text_color=”#002b99″ header_4_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” link_text_color=”#FF7C02″ sticky_enabled=”0″] An introduction to genetic testing Most of the babies born who
- [Skin](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/skin/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”90px||52px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”7px||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Skin [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” text_text_color=”gcid-f743be1f-46bf-4685-bc55-7e8b347eb98d” text_font_size=”16px” header_3_text_color=”#FF7C02″ hover_enabled=”0″ global_colors_info=”{%22gcid-f743be1f-46bf-4685-bc55-7e8b347eb98d%22:%91%22text_text_color%22%93}” sticky_enabled=”0″] ​The skin may be pale and transparent
- [Ankyloblepharon-Ectodermal Defects-Cleft Lip/Palate (AEC)](https://edsociety.co.uk/ankyloblepharon-ectodermal-defects-cleft-lip-palate-aec/) - AEC syndrome is part of the ectodermal dysplasia spectrum. It presents with a wide range of symptoms that often overlap with other ED issues, making diagnosis challenging.
- [Dental Implants](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/teeth/dental-implants/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”96px||87px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Dental Implants in Patients With Ectodermal Dysplasias [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.19.5″ _module_preset=”default” max_width=”1049px” locked=”off” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ text_orientation=”center” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″ width=”100%”
- [Going to the dentist has been the bane of my life. I wanted to turn that into something positive.](https://edsociety.co.uk/becoming-a-dental-nurse/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”91px||0px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] “Going to the dentist has been the bane of my life…..I wanted to turn that into something positive.” [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”]
- [Teeth](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/teeth/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”90px||85px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ header_2_font_size=”30px” custom_margin=”||10px||false|false” global_colors_info=”{}”] Teeth Symptoms in Ectodermal Dysplasia [/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ header_3_text_color=”#FF7C02″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Typical Dental Development Most people have 20 primary (baby) teeth
- [Hair](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/hair/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”98px||54px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_text_color=”#002b99″ header_2_text_color=”#002b99″ header_3_text_color=”#FF7C02″ text_orientation=”center” background_layout=”dark” custom_padding=”||4px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Hair Symptoms in ED Hair symptoms are common in many types of ectodermal dysplasia, but their presence and severity can vary significantly depending
- [Nails](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/nails/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”95px||35px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Nail Abnormalities in Ectodermal Dysplasia [/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″ header_3_text_color=”#FF7C02″] Just as there are many types of ectodermal dysplasia, nail
- [Types of ED](https://edsociety.co.uk/what-is-ed/types-of-ed/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”93px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||3px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.26.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Types of ED [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” min_height=”558.3px” custom_margin=”-20px|auto||auto||” custom_padding=”||5px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.26.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”-25px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] There are 180+
- [Incontinentia Pigmenti](https://edsociety.co.uk/what-is-ed/types-of-ed/welcome-to-the-incontinentia-pigmenti-section/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”5899px” custom_padding=”52px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2024/08/IP-Logo.png” alt=”IP logo of an eye and orange blue text” title_text=”IP Logo” _builder_version=”4.27.0″ _module_preset=”default” module_alignment=”left” global_colors_info=”{}”][/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”-21px|||||” custom_padding=”15px||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] What is Incontinentia Pigmenti? Ectodermal Dysplasia (ED) is
- [Multi Clinics](https://edsociety.co.uk/medical-research/care-pathways/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”623px” custom_padding=”105px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Multi Clinics [/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” header_2_text_color=”#FF7C02″ header_3_text_color=”#FF7C02″ sticky_enabled=”0″] The ED Society are working towards creating Care Pathways which are a way
- [Articles](https://edsociety.co.uk/medical-research/articles/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”2576px” custom_padding=”94px||28px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” column_structure=”1_2,1_2″ custom_padding=”7px|1px|11px|||”][et_pb_column _builder_version=”4.27.4″ _module_preset=”default” type=”1_2″][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” text_text_color=”#0C54A0″ sticky_enabled=”0″ text_font_size=”16px” link_text_color=”#FF7C02″] The Student Voice Prize – Beacon for Rare Diseases The Student Voice Prize is an annual, international essay competition that raises the profile of
- [Running for Jude](https://edsociety.co.uk/running-for-jude/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”88px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Running for Jude [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”3px|||||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#0C54A0″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” header_4_text_color=”#FF7C02″ sticky_enabled=”0″] “Ectodermal Dysplasia, never
- [A Family’s Journey: Discovering Ectodermal Dysplasia Together](https://edsociety.co.uk/support/ed-community-stories/a-familys-journey-discovering-ectodermal-dysplasia-together/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ custom_padding=”||9px|||” global_colors_info=”{}” min_height=”1246.6px”][et_pb_row _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”-47px|auto||auto||” custom_padding=”7px||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_heading title=”A Family’s Journey: Discovering Ectodermal Dysplasia Together” _builder_version=”4.27.4″ _module_preset=”default” title_text_align=”left” title_text_color=”#FF7C02″ title_font_size=”28px” min_height=”45px” custom_margin=”||1px|||” global_colors_info=”{}”][/et_pb_heading][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”February is Ectodermal Dysplasia Awareness Month – Rachael Dyke” _builder_version=”4.27.4″ _module_preset=”default” title_level=”h4″ global_colors_info=”{}”][/et_pb_heading][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.4″ From having never heard of this rare condition, to a family with four diagnosed and more on the pathway in just four years.
- [We are not just a group of people, we are a family](https://edsociety.co.uk/we-are-not-just-a-group-of-people-we-are-a-family/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”94px||40px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] We are not just a group of people, we are a family [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”5px||0px|||” global_colors_info=”{}” custom_margin=”-30px|auto||auto||”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″
- [Scalp Erosion AEC and EEC](https://edsociety.co.uk/scalp-erosion-aec-and-eec/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”-47px|auto||auto||” global_colors_info=”{}” theme_builder_area=”post_content” custom_padding=”7px||0px|||”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_heading title=”Scalp Erosion” _builder_version=”4.27.4″ _module_preset=”default” title_text_align=”left” title_text_color=”#FF7C02″ title_font_size=”28px” min_height=”45px” custom_margin=”||1px|||” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″][/et_pb_heading][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2025/02/Tess-Jones.png” title_text=”Tess Jones” show_in_lightbox=”on” align=”center” _builder_version=”4.27.4″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” alt=”an image of Tess Our daughter was born with Haywells syndrome and was affected by skin erosion on her head from 10 days old. It became very infected and eroded all over her scalp.
- [Jaye's Hair Journey Part 2](https://edsociety.co.uk/is-there-really-something-like-this-for-people-with-thin-missing-hair-like-me/jayes-hair-journey-part-2/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”87px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||-9px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Jaye’s Hair Journey – Part 2 [/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Jaye travelled to Iconic Fckin Hair last week and
- [How You Can Help](https://edsociety.co.uk/get-involved/how-you-can-help/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”113px||0px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}” min_height=”1089.7px” custom_margin=”-33px|||||”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}” custom_padding=”7px||0px|||”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] How You Can Help [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}” custom_padding=”7px||0px|||” min_height=”615.1px”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”3px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] The
- [About Us](https://edsociety.co.uk/about-us/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”100px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] About Us [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”-3px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] Welcome from our Chief Executive and Founder, Diana
- [Contact Us](https://edsociety.co.uk/contact-us/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”89px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” text_text_color=”#0C54A0″ text_font_size=”15px” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] We’re Here for You Every Step of the Way Thank you for your interest in learning more about ectodermal dysplasia. Whether you have questions, need guidance,
- [My Implant Journey](https://edsociety.co.uk/support/ed-community-stories/my-implant-journey/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”-47px|auto||auto||” hover_enabled=”0″ global_colors_info=”{}” column_structure=”1_2,1_2″ sticky_enabled=”0″][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_heading title=”My Implant Journey – Leonie Watson” _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”||1px|||” hover_enabled=”0″ global_colors_info=”{}” min_height=”45px” title_text_align=”left” title_text_color=”#FF7C02″ title_font_size=”28px” sticky_enabled=”0″][/et_pb_heading][/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”-47px|auto||auto||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”–et_global_body_font||||||||” text_text_color=”gcid-heading-color” text_font_size=”15px”
- [Our Journey](https://edsociety.co.uk/get-involved/fundraising/fundraising-stories/our-journey/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”105px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}” custom_margin=”-34px|||||”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]Our Journey[/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_text_color=”#FF7C02″ text_font_size=”16px” custom_margin=”||14px|||” global_colors_info=”{}”]Chantelle and Tyler Epton[/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”]Hey guys! My name is Chantelle, and my wonderful little
- [Mild variants of Ectodermal Dysplasia](https://edsociety.co.uk/what-is-ed/types-of-ed/mild-variants/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.27.0″ _module_preset=”default” background_enable_color=”off” custom_margin=”||||false|false” custom_padding=”98px||48px||false|false” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Have you received advice that you or your child may have a mild variant of Ectodermal Dysplasia? [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||”
- [ED in the Media](https://edsociety.co.uk/about-us/ed-in-the-media/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”103px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] ED in the Media [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.25.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.25.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” text_text_color=”#E09900″ text_font_size=”24px” header_text_align=”center” header_font_size=”16px” header_2_text_align=”center” header_2_text_color=”#E09900″ header_2_font_size=”30px” header_2_line_height=”1.2em” custom_margin=”||10px||false|false” header_2_font_size_tablet=”30px” header_2_font_size_phone=”31px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}”] Radio
- [Ways to Donate](https://edsociety.co.uk/get-involved/how-can-i-donate/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”123px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Ways To Donate [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}” custom_padding=”0px||2px|||” custom_margin=”-40px|auto||auto||”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”-1px|||||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{%22gcid-0b738e94-8a5e-4e5c-8969-81d151b757fa%22:%91%22header_4_text_color%22%93}” header_4_text_color=”gcid-0b738e94-8a5e-4e5c-8969-81d151b757fa” sticky_enabled=”0″] Can you
- [What to do when it is hot](https://edsociety.co.uk/support/temperature-control/what-to-do-when-it-is-hot/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”89px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] What to do when it is hot [/et_pb_text][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] “Although heat waves represent a threat to many, including those
- [Sun protection](https://edsociety.co.uk/support/temperature-control/sun-protection/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”91px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”-17px||10px||false|false” global_colors_info=”{}”] Sun Protection [/et_pb_text][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Individuals affected by Ectodermal Dysplasia and lack temperature control must be kept cool in summer. In addition
- [Advocacy](https://edsociety.co.uk/support/raiseawareness/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”86px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]Raise Awareness[/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”||2px|||” custom_padding=”||0px|||” global_colors_info=”{}”] The ectodermal dysplasias are a group of 180+ rare, genetic conditions involving the hair, teeth, nails, glands
- [Can you recommend a Doctor or Specialist?](https://edsociety.co.uk/medical-research/can-you-recommend-a-doctor-or-specialist/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”1070.7px” custom_padding=”97px||0px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Can you recommend a Doctor or Specialist? [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] We love to hear positive stories about any help and support you
- [XLHED Clinical Trials](https://edsociety.co.uk/medical-research/research/treatment-to-correct-some-of-the-symptoms-in-x-linked-hypohidrotic-ectodermal-dysplasia/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”1359px” custom_padding=”91px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] XLHED Clinical Trials [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_text_color=”#002b99″ header_2_text_color=”#002b99″ header_3_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] The ED Society are proud to continue supporting this research, which
- [Temperature Research Programme](https://edsociety.co.uk/medical-research/research/temperature-research-programme-in-portsmouth/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”1020px” custom_padding=”99px||57px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Temperature Research Programme [/et_pb_text][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_text_color=”#002b99″ header_2_text_color=”#002b99″ header_3_text_color=”#002b99″ header_4_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] The Extreme Environments Laboratory at the University of Portsmouth have been learning
- [Research](https://edsociety.co.uk/medical-research/research/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”90px||67px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Research [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] You can also find updates on the latest research and stories in our articles library.
- [Ectodermal Dysplasia Inheritance Patterns](https://edsociety.co.uk/what-is-ed/genetics/inheritance-patterns/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”95px||52px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.26.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Inheritance Patterns [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Ectodermaldysplasias can be inherited in different pattern. To understand these patterns, it is important to understand
- [Six Key Genes in ED](https://edsociety.co.uk/what-is-ed/genetics/six-key-genes-in-ectodermal-dysplasia/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”92px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Six Key Genes in ED [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] What are the Six Key Genes in the Ectodermal Dysplasias? EDA, EDAR, EDARADD, WNT10A, IKBKG
- [Females with Ectodermal Dysplasia](https://edsociety.co.uk/what-is-ed/genetics/features-of-ectodermal-dysplasia-dominance-sex-and-women/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”101px||48px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Females with Ectodermal Dysplasia [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Features of Ectodermal Dysplasia: dominance, sex and women Angus Clarke, Department of Medical Genetics,
- [Sweat Function](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/sweat-function/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”96px||46px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Sweat Function [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Another common feature of Ectodermal Dysplasia is impaired temperature control. Individuals affected by Ectodermal Dysplasia have a reduced
- [Respiratory System](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/respiratory-system/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”90px||41px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Respiratory System [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] The linings of the nose, larynx, trachea and lungs are moistened by various glands, some of which may
- [Eyes](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/eyes/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”94px||38px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Eyes [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Most people affected by Ectodermal Dysplasia have normal vision and appear to have no greater need for glasses than
- [Ear, Nose and Throat](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/ear-nose-and-throat/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”101px||53px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||2px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Ears, Nose and Throat [/et_pb_text][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_2_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Ears Hearing loss may occur due to hard impacted wax possibly caused by the
- [Teeth Tips](https://edsociety.co.uk/what-is-ed/symptoms-of-ed/teeth/teeth-tips/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”91px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Teeth Tips [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_text_color=”#002b99″ header_2_font=”|600|||||||” header_2_text_color=”#002b99″ header_3_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]A regular teeth-cleaning routine is essential for good oral health. Follow these tips
- [This is a tricky thing to write about...](https://edsociety.co.uk/hair-thinning/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”92px||36px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] This is a tricky thing to write about… [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] This is a tricky thing to write about, but here goes… My
- [Alphabetical List](https://edsociety.co.uk/what-is-ed/types-of-ed/alphabetical-list/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”92px||43px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.17.4″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Alphabetical List [/et_pb_text][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] The 180+ ectodermal dysplasias are recognised and named based on the specific combination of symptoms shown in affected
- [We Felt So Scared and Lost Until We Came Across the ED Support Group](https://edsociety.co.uk/he-makes-us-proud-every-day/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”91px||35px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] We Felt So Scared and Lost Until We Came Across the ED Support Group [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”3px||6px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″
- [Virtual Fundraising](https://edsociety.co.uk/virtual-fundraising/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”]Due to the current coronavirus pandemic, fundraising for charities has taken a big hit. But, fundraising does not have to stop all together. We know it is difficult during these uncertain times, but why not get involved and support the ED Society from the comfort of your own home
- [Unsubscribe](https://edsociety.co.uk/unsubscribe/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Tickets Checkout](https://edsociety.co.uk/tickets-checkout/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”] Purchase Tickets Checkout Error! Something went wrong! Oops, no tickets! Please browse events and add tickets to check out. [/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Terms and Conditions](https://edsociety.co.uk/terms-and-conditions/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”88px||51px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Terms and Conditions [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Terms of use These terms of use, together with this site’s privacy policy and our cookies policy, set out the
- [Taking your ED children on holiday](https://edsociety.co.uk/taking-your-ed-children-on-holiday-2/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”91px||88px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Taking your ED children on holiday [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”1px||0px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Hello all! For those
- [Useful Links](https://edsociety.co.uk/support/useful-links/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”92px||93px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Useful Links [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Click on the relevant logo below and you will be taken to their
- [Support Fund](https://edsociety.co.uk/support/support-fund/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”95px||26px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Support Fund [/et_pb_text][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_text_color=”#002b99″ header_2_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] In response to the needs of the families we support, we established the ED Society Support
- [Cooling Tips](https://edsociety.co.uk/support/temperature-control/cooling-tips/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”91px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Cooling Tips [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”0px|||||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] It doesn’t take long for a parent
- [Sport and Temperature Control for Children](https://edsociety.co.uk/support/education/sport-and-temperature-control-for-children/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”99px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Sport and Temperature Control for Children [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”0px|||||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] The lack of
- [Are you off to University or Higher Education?](https://edsociety.co.uk/support/financial-benefits/are-you-off-to-university-or-higher-education/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”92px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Are you off to University or Higher Education? [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”||-3px|||” custom_padding=”||0px|||” global_colors_info=”{}”] Diana Perry, CEO of the ED Society When Joe was going
- [Blue Badge](https://edsociety.co.uk/support/financial-benefits/blue-badge/) - http://gov.wales/topics/transport/road-users/bluebadgeschemeinfo/?lang=en [/et_pb_text][/et_pb_column][/et_pb_row][/et_pb_section]
- [Can you recommend a Doctor or Specialist?](https://edsociety.co.uk/support/can-you-recommend-a-doctor-or-specialist/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”1070.7px” custom_padding=”88px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Can you recommend a Doctor or Specialist? [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] We love to hear positive stories about any help and support
- [Coping with ED](https://edsociety.co.uk/support/coping-with-ed/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”||0px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Coping with ED [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ header_3_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Being diagnosed and learning to live with a genetic condition can cause social and
- [Cooling Aids](https://edsociety.co.uk/support/temperature-control/cooling-aids/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”86px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Cooling Aids [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] There are many inexpensive cooling products available such as battery-operated cooling mist dispensers, gel packs, head/neck
- [Raising Funds - WE ARE STRONGER TOGETHER!](https://edsociety.co.uk/raising-funds-we-are-stronger-together/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”86px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Raising Funds –WE ARE STRONGER TOGETHER! [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Funds Urgently Needed This
- [Stuart Atkiss London Marathon 2019](https://edsociety.co.uk/stuart-atkiss-london-marathon-2019/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”93px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Stuart Atkiss –London Marathon 2019 [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”0px|||||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] 28th April 2019 what
- [Stuart Atkiss - Trustee & Fundraising Coordinator](https://edsociety.co.uk/stuart-atkiss-trustee-fundraising-coordinator/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”86px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Stuart Atkiss –Trustee & Fundraising Coordinator [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”1px|||||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Hi, my name
- [Ride Access Pass](https://edsociety.co.uk/ride-access-pass/) - We are more than happy to help and support you through this process by checking over any documentation before you apply. We can also step in with a supporting letter to help with your application. Please get in touch with us today – jaye@edsociety.co.uk[/et_pb_text][/et_pb_column][/et_pb_row][/et_pb_section]
- [Privacy Policy](https://edsociety.co.uk/privacy-policy/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”93px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Privacy Policy [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] How we keep your personal information safe This privacy policy sets out how the Ectodermal Dysplasia Society uses
- [Sample Page](https://edsociety.co.uk/sample-page/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”]This is an example page. It’s different from a blog post because it will stay in one place and will show up in your site navigation (in most themes). Most people start with an About page that introduces them to potential site visitors. It might say something like this:
- [Payments](https://edsociety.co.uk/payments/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”]{ "checkout": { "id": "CAISEHGimXh-C3RIT4og1a6u1qw", "checkout_page_url": "https://connect.squareup.com/v2/checkout?c=CAISEHGimXh-C3RIT4og1a6u1qw&l=CYTKRM7R7JMV8", "ask_for_shipping_address": true, "merchant_support_email": "merchant+support@website.com", "pre_populate_buyer_email": "example@email.com", "pre_populate_shipping_address": { "address_line_1": "1455 Market St.", "address_line_2": "Suite 600", "locality": "San Francisco", "administrative_district_level_1": "CA", "postal_code": "94103", "country": "US", "first_name": "Jane", "last_name": "Doe" }, "redirect_url": "https://merchant.website.com/order-confirm", "order": { "location_id": "location_id", "customer_id": "customer_id", "reference_id": "reference_id", "line_items": [ {
- [Paying in your donations](https://edsociety.co.uk/paying-in-your-donations/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”91px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Paying in your donations [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Thank you for your support to help our ED families. You’ve done the hard part, so
- [Jaye's Hair Journey](https://edsociety.co.uk/is-there-really-something-like-this-for-people-with-thin-missing-hair-like-me/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”87px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” custom_padding=”||0px|||” global_colors_info=”{}”] Jaye’s Hair Journey [/et_pb_text][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] All of our ED community will know our fantastic Family Liaison Officer, Jaye…… Jaye joined
- [It's In Your Hands](https://edsociety.co.uk/its-in-your-hands/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”86px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] It’s In Your Hands [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”0px|||||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] The Van de Graaff machine
- [How your donations make all the difference](https://edsociety.co.uk/how-your-donations-make-all-the-difference/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”92px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] How your donations make all the difference [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] The ED Society’s mission is that every individual and family affected by Ectodermal
- [HOLD A CHARITY BOX COLLECTION](https://edsociety.co.uk/hold-a-charity-box-collection/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”90px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] HOLD A CHARITY BOX COLLECTION [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” custom_padding=”0px|||||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Easy fundraising Holding a
- [Growing up with Ectodermal Dysplasia](https://edsociety.co.uk/growing-up-with-ectodermal-dysplasia/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”86px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Growing up with Ectodermal Dysplasia [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”right” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Jack Perry I am writing this
- [Giving Tuesday 2020](https://edsociety.co.uk/giving-tuesday/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”93px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Giving Tuesday 2020 [/et_pb_text][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2020/11/Giving-tuesday.png” title_text=”Giving-tuesday” align=”center” _builder_version=”4.24.2″ _module_preset=”default” min_height=”275px” height=”198px” global_colors_info=”{}”][/et_pb_image][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” header_2_text_color=”#002b99″ sticky_enabled=”0″] #GiveBack2020 This Giving Tuesday we are
- [Corporate Support](https://edsociety.co.uk/get-involved/corporate-support/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”92px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Corporate Support [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] We are a not-for-profit organisation and rely totally on donations and fundraising. With your support we
- [Volunteering](https://edsociety.co.uk/get-involved/volunteering/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”88px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Volunteering [/et_pb_text][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Why volunteer for the ED Society? There are many reasons why people choose to volunteer. Here are just a
- [My smile is my favourite thing to wear](https://edsociety.co.uk/get-involved/fundraising/ectodermal-dysplasia-month/my-smile-is-my-favourite-thing-to-wear/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”88px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] My smile is my favourite thing to wear [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”cea61610-b0e1-4225-a8fe-bd6d7d58d96b” text_text_color=”#FFFFFF” text_orientation=”center” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] (Ectodermal Dysplasia Awareness Month 2020 – Poem by Ami Hopkins) [/et_pb_text][et_pb_text
- [Even if you only remember the name, it’s a step in the right direction](https://edsociety.co.uk/get-involved/fundraising/ectodermal-dysplasia-month/even-if-you-only-remember-the-name-its-a-step-in-the-right-direction/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”94px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Even if you only remember the name, it’s a step in the right direction [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] February 2020 This is
- [Order Completed](https://edsociety.co.uk/tickets-order/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”] Whoops! No order information is available because no purchase was made. back home [/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Online Shop](https://edsociety.co.uk/online-shop/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [import](https://edsociety.co.uk/import/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [EDELIFE PRESS RELEASE - May 2023](https://edsociety.co.uk/edelife-press-release-may-2023/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”107px||0px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]EDELIFE PRESS RELEASE – May 2023[/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”]**Reproduced for the ED Society with the kind permission of the NFED in the U.S.**[/et_pb_text][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca”
- [EspeRare - A Potential Treatment for XLHED](https://edsociety.co.uk/esperare-a-potential-treatment-for-xlhed/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”99px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]XLHED Families[/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]Two Partners Re-Launch XLHED Research Study By Mary Fete, Executive Director, NFED[/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.25.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.25.2″ _module_preset=”default”
- [Exploring the experience of parents and carers of children with appearance affecting conditions or injuries](https://edsociety.co.uk/exploring-the-experience-of-parents-and-carers-of-children-with-appearance-affecting-conditions-or-injuries/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”86px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]Exploring the experience of parents and carers of children with appearance affecting conditions or injuries[/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]March 2021 Last summer we asked
- [FAQs](https://edsociety.co.uk/faqs/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”98px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] FAQs [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Here are just some of our faqs surrounding Ectodermal Dysplasia. If you cannot find the answer to your questions
- [Fundraising Ideas](https://edsociety.co.uk/fundraising-ideas/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”98px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Fundraising Ideas [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Take a look at our latest charity fundraising ideas for the Ectodermal Dysplasia Society. If you
- [Coffee Mornings for Ectodermal Dysplasia](https://edsociety.co.uk/fundraising-ideas/coffee-mornings-for-ectodermal-dysplasia/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”101px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]Coffee Morning[/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”-4px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] Coffee. Cake. What’s not to love? A coffee morning or
- [TCS London Marathon 2023](https://edsociety.co.uk/get-involved/fundraising/london-marathon-2023/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”87px||4px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] TCS London Marathon 2023 [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] The TCS London Marathon returns on Sunday 23 April 2023. Have you or someone you know
- [Fundraising in 2022](https://edsociety.co.uk/get-involved/fundraising/fundraising-events-in-2022/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” min_height=”901px” custom_padding=”104px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]Fundraising in 2022[/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”]After spending a lot of the time in lockdown over the last two years, it is wonderful to see
- [Leave a Legacy](https://edsociety.co.uk/get-involved/leave-a-legacy/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”114px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Leave a Legacy [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”8px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] After you’ve made provisions in your will
- [Friends of the ED Society](https://edsociety.co.uk/get-involved/friends-of-the-ed-society/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”103px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Friends of the ED Society [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] As a charity we want to provide free information and support about the Ectodermal Dysplasias
- [EEC, My Bladder and Me!](https://edsociety.co.uk/eec-my-bladder-and-me/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”99px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]EEC, My Bladder and Me![/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”]Hi everyone, I am Julia Errington. I am 62 years old, and I have ectrodactyly ectodermal dysplasia with
- [Update from the ED Society and Covid-19 - March 2020](https://edsociety.co.uk/home/coronavirus-updates/update-from-the-ed-society-and-covid-19/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”102px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Update from the ED Society and Covid-19 – March 2020 [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] We hope that you are all well and are managing
- [Overcoming Coronavirus with Ectodermal Dysplasia](https://edsociety.co.uk/home/coronavirus-updates/overcoming-covid-19-with-ectodermal-dysplasia/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”97px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Overcoming Coronavirus with Ectodermal Dysplasia [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] 1st April 2020 In these uncertain and isolated times, we very much need some positive
- [#DistanceAware Initiative](https://edsociety.co.uk/home/coronavirus-updates/distanceaware-initiative/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”98px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] #DistanceAware Initiative [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.23″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.23″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2020/08/ED-Lanyard-NEW.png” alt=”Distance aware” title_text=”ED-Lanyard-NEW” align=”center” _builder_version=”4.23.1″ _module_preset=”default” global_colors_info=”{}”][/et_pb_image][/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.23″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2020/07/ED-Distance-Aware-Badge-1.png” title_text=”ED-Distance-Aware-Badge-1″ _builder_version=”4.23.1″ _module_preset=”default” max_width=”61%”
- [Why do we need to wash our hands for 20 seconds?](https://edsociety.co.uk/home/coronavirus-updates/why-do-we-need-to-wash-our-hands-for-20-seconds/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”99px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Why do we need to wash our hands for 20 seconds? [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Simply, the corona has a fatty sticky outer layer
- [Ectodermal Dysplasia and core temperature](https://edsociety.co.uk/home/coronavirus-updates/ectodermal-dysplasia-and-core-temperature/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”91px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Ectodermal Dysplasia and core temperature [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] The following charts shows temperature ranges at different ages. The most accurate means of taking
- [Face Covering Exemption Card for Ectodermal Dysplasia](https://edsociety.co.uk/home/coronavirus-updates/face-covering-exempt-card-for-ectodermal-dysplasia/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”98px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Face Covering Exemption Card [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Wearing face-coverings is mandatory in shops, supermarkets and public transport in England (from 24 July), Scotland
- [Ectodermal Dysplasia and Covid-19 - Letter from CEO Diana Perry](https://edsociety.co.uk/home/coronavirus-updates/covid-19-letter-from-ceo/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”96px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Ectodermal Dysplasia and Covid-19 – Letter from CEO Diana Perry [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] I hope you are all keeping well and safe during
- [Coronavirus and ED FAQs](https://edsociety.co.uk/home/coronavirus-updates/coronavirus-and-ed-faqs/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”99px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Coronavirus and ED FAQs [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Below we have the most frequently asked questions surrounding the Coronavirus and Ectodermal Dysplasia. [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″
- [Should I have the Covid vaccine?](https://edsociety.co.uk/home/coronavirus-updates/should-i-have-the-covid-vaccine/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”96px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Should I have the Covid vaccine? [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] The COVID-19 vaccine provides the best protection against coronavirus. Three vaccines for COVID-19 have
- [Important information and updates about Covid-19 for ED families](https://edsociety.co.uk/home/coronavirus-updates/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”100px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Important information and updates about Covid-19 for ED families [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] Updated November 2021 – Latest coronavirus guidance in your nation Each
- [Disclaimer](https://edsociety.co.uk/disclaimer/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”95px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Disclaimer [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] We have outlined the Ectodermal Dysplasia Society’s legal disclaimer. The materials contained on this website are provided for general
- [Donor Dashboard](https://edsociety.co.uk/donor-dashboard/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”] [/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Donor Dashboard](https://edsociety.co.uk/donor-dashboard-2/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”] [/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Donations and Payments](https://edsociety.co.uk/donation/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”] [/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Donation Confirmation](https://edsociety.co.uk/donation-confirmation/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”] [/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Donation Failed](https://edsociety.co.uk/donation-failed/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”]We're sorry, your donation failed to process. Please try again or contact site support.[/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Donation Confirmation](https://edsociety.co.uk/donation-confirmation-2/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”] [/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Donate](https://edsociety.co.uk/donate/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”] [/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Divi Login Designer](https://edsociety.co.uk/divi-login-designer/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”]This page is used for Divi Login Designer extension. It will not be visible to your readers. Do not delete it.[/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [We Welcome Up and Coming Tennis Player as Patron of the ED Society](https://edsociety.co.uk/about-us/meet-the-team-2/we-welcome-up-and-coming-tennis-player-as-patron-of-the-ed-society/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”84px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]We Welcome Up and Coming Tennis Player as Patron of the ED Society[/et_pb_text][et_pb_code _builder_version=”4.25.2″ _module_preset=”default” global_colors_info=”{}”][/et_pb_code][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”]June 2021 In 2020, we were very
- [What We Do](https://edsociety.co.uk/about-us/help-and-support/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”99px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] What We Do [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”-4px|||||” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] The ED Society support individuals
- [Awards](https://edsociety.co.uk/about-us/achievements-and-awards/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”102px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Awards [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”-2px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] Over the years we have received some wonderful awards
- [BMA Patient Information Awards September 2019](https://edsociety.co.uk/about-us/achievements-and-awards/bma-patient-information-awards-september-2019/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”105px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] BMA Patient Information Awards September 2019 [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”4px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] September, Diana attended the
- [Communique Awards July 2019](https://edsociety.co.uk/about-us/achievements-and-awards/communique-awards-july-2019/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”89px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Communique Awards July 2019 [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”2px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] The Ectodermal Dysplasia Society are excited
- [Bald is Beautiful](https://edsociety.co.uk/bald-is-beautiful/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”95px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Bald is Beautiful [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_2,1_2″ make_equal=”on” _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_margin=”7px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] I was asked to model for the
- [Cookie Policy](https://edsociety.co.uk/cookie-policy/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”99px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Cookie Policy [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] We use cookies on our website so that we can tailor the content to you, ensure it’s working
- [Current Women’s World Snooker Champion Reanne Evans teams up with The Ectodermal Dysplasia Society for tilt at the World Professional Championship.](https://edsociety.co.uk/world-snooker-champion-teams-up-with-the-ectodermal-dysplasia-society/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_margin=”61px|auto||auto||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Current Women’s World Snooker Champion Reanne Evans teams up with The Ectodermal Dysplasia Society for tilt at the World Professional Championship. [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark”
- [Get Involved](https://edsociety.co.uk/get-involved/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_margin=”-29px|||||” custom_padding=”119px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” custom_margin=”2px|auto||auto||” global_colors_info=”{}” column_structure=”1_2,1_2″][et_pb_column type=”1_2″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Get Involved [/et_pb_text][et_pb_text _builder_version=”4.27.0″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Your time is one of the most valuable gifts you can
- [Recurring Donations](https://edsociety.co.uk/recurring-donations/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][et_pb_text admin_label=”Text”] Please verify your email to access your donation history. Donation Email: [/et_pb_text][/et_pb_column] [/et_pb_row] [/et_pb_section]
- [Shop](https://edsociety.co.uk/shop/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”106px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”] Online Shop [/et_pb_text][et_pb_shop _builder_version=”4.25.2″ _module_preset=”default” theme_builder_area=”post_content” hover_enabled=”0″ sticky_enabled=”0″ box_shadow_style_image=”preset6″ title_font=”–et_global_heading_font|600|||||||” title_text_align=”center” title_text_color=”#002b99″ price_font=”–et_global_body_font|600|||||||” price_text_align=”center” price_text_color=”#002b99″ module_alignment=”center” columns_number=”3″ orderby=”date-desc”][/et_pb_shop][/et_pb_column][/et_pb_row][/et_pb_section]
- [Christmas Party 2022](https://edsociety.co.uk/christmas-party-2022/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”100px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”] Christmas Party 2022 [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] 1 2 3 ► [/et_pb_text][/et_pb_column][/et_pb_row][/et_pb_section]
- [Ectodermal Dysplasia Society Newsletter](https://edsociety.co.uk/newsletter/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”94px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” global_colors_info=”{}”]Newsletter Subscription[/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] [/et_pb_text][/et_pb_column][/et_pb_row][/et_pb_section]
- [Fundraising Packs](https://edsociety.co.uk/fundraising-packs/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”107px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.25.2″ _module_preset=”9ed0db87-6f90-4830-84bc-e81c036e44ca” header_text_align=”center” header_2_text_align=”center” header_2_text_color=”#002b99″ custom_margin=”||10px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] Fundraising Pack [/et_pb_text][et_pb_text _builder_version=”4.17.4″ _module_preset=”d3fb3f8b-c37a-4e27-a442-265cf792c614″ text_text_color=”#002b99″ text_orientation=”center” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”] If you are interested in fundraising download our pack below [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.22.1″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.22.1″
- [Fundraising Stories](https://edsociety.co.uk/get-involved/fundraising/fundraising-stories/) - [et_pb_section fb_built=”1″ admin_label=”About” _builder_version=”4.17.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”102px||65px|||” top_divider_style=”asymmetric2″ top_divider_color=”#002b99″ bottom_divider_style=”ramp2″ bottom_divider_color=”#002b99″ collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.25.2″ _module_preset=”default”][et_pb_column _builder_version=”4.25.2″ _module_preset=”default” type=”4_4″][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2019/06/London-Marathon-2019-Stuart.pdf” _builder_version=”4.25.2″ _module_preset=”default” align=”center” force_fullwidth=”on” hover_enabled=”0″ sticky_enabled=”0″][/et_pb_image][/et_pb_column][/et_pb_row][/et_pb_section]
- [Site Map](https://edsociety.co.uk/site-map/) - [et_pb_section admin_label=”section”] [et_pb_row admin_label=”row”] [et_pb_column type=”4_4″][/et_pb_column] [/et_pb_row] [/et_pb_section]

## Donation Forms

- [Classic](https://edsociety.co.uk/donations/8694/)
- [Donate by clicking an amount below](https://edsociety.co.uk/donations/donate-by-clicking-an-amount-below/) - Your gift can make a real difference in the lives of children and adults affected by Ectodermal Dysplasia
- [Donation Form](https://edsociety.co.uk/donations/donation-form/)
- [Donate by clicking an amount below](https://edsociety.co.uk/donations/givewp-donation-form/) - []
- [Legacy](https://edsociety.co.uk/donations/8706/)

## Products

- [Everybody's Different Children's Book](https://edsociety.co.uk/online-shop/everybodys-different-childrens-book-2/) - Our award winning introduction to Ectodermal Dysplasia has been designed for children aged 4+, whether they are affected by ED or not, and allows parents and schools to explain the condition in child-friendly terms. It facilitates empathy and gives children the ideas and motivation to then help their peers. It has a wipe-clean coating.
- [ED Society Blue Cap](https://edsociety.co.uk/online-shop/ed-blue-cap-2/) - Show your support with our pale blue ED Society cap – a stylish and practical addition to any wardrobe. Whether you're raising awareness or just looking for a casual cap with meaning, this is a great way to represent the ED community.
- [A Guide to Ectodermal Dysplasia](https://edsociety.co.uk/online-shop/a-guide-to-ectodermal-dysplasia-2/) - About This Guide This comprehensive 48-page booklet is designed to give you – and those around you – a clear and detailed understanding of Ectodermal Dysplasia (ED). Whether you're newly diagnosed, supporting a loved one, or working in a healthcare setting, this guide covers everything you need to know about living with and managing ED. We encourage you to share this booklet with your GP, medical specialists, teachers, family members, and friends. The more people understand about ED, the better they can support you or your child in everyday life and healthcare decisions.
- [Ectodermal Dysplasia Alert Card](https://edsociety.co.uk/online-shop/ectodermal-dysplasia-alert-card-2/) - Be prepared wherever you go with our ED Emergency Alert Card. This wallet-sized card provides vital information about ectodermal dysplasia (ED) and how it may affect you in an emergency. The front features a brief overview of the condition, while the reverse lists key medical issues and symptoms to help first responders or healthcare professionals understand your needs quickly and accurately. Discreet, durable, and easy to carry, it’s designed to give you peace of mind—knowing important details are always at hand.Size: 8.5cm x 5cm (fits easily in any wallet or purse)
- [ED Clear Sticker Pack – Set of 2](https://edsociety.co.uk/online-shop/ed-stickers-2/) - Show your support for the ED community with our clear sticker pack, featuring two unique designs: the ED Society logo and our bold #NoSweat message. These versatile, waterproof stickers are ideal for personalising items like: Water bottles Lunch boxes Stationery Summer spray bottles And more! Perfect for everyday use, or as a fun way to raise awareness about Ectodermal Dysplasia wherever you go.
- [ED Wristbands](https://edsociety.co.uk/online-shop/ed-wristbands-2/) - Show your support for the ectodermal dysplasia community with our ED awareness wristband. Made from durable, comfortable silicone, this unisex wristband is a simple but powerful way to raise awareness and spark conversation. Whether you're living with ED, supporting a loved one, or just want to help spread the word, wearing this band is a visible reminder that no one is alone.
- [ED Key Fob](https://edsociety.co.uk/online-shop/ed-key-fob-2/) - Carry a little piece of the ED community with you wherever you go! Our ED keychains are the perfect way to show your support, raise awareness, and keep the community close—whether clipped to your keys, bag, or lanyard. Durable, lightweight, and designed with care, each keychain is a small symbol of strength, and connection. Perfect as a gift or a daily reminder that you're part of something special.
- [ED Pen](https://edsociety.co.uk/online-shop/ed-pen-2/) - Show your support in style with our sleek and practical ED Awareness Pen. Featuring a comfortable grip and smooth black ink, it’s perfect for everyday use at home, work, or school. Branded with the ED logo, this pen is a simple way to raise awareness while helping us spread the word about ectodermal dysplasia.
- [EDS Handmade Beaded Bracelet](https://edsociety.co.uk/online-shop/eds-handmade-beaded-bracelet/) - These beautiful handmade beaded bracelets have been lovingly created by one of our young ED members. Each one is unique and crafted with care, making it a special way to show your support for those living with Ectodermal Dysplasia. Wear yours proudly to help raise awareness and support the work of the ED Society.
- [ED Society Notepad](https://edsociety.co.uk/online-shop/ed-society-notepad/) - Keep your thoughts, reminders, or to-do lists in one place with our handy ED Society notepad! Support the ED Society while staying organised – ideal for home, work, or gifts.
- [ED Society T-shirt](https://edsociety.co.uk/online-shop/ed-society-t-shirt/) - Stay comfortable and show your support with our white tee, featuring a small ED Society logo on the front and larger on the back with #NoSweat Perfect for raising awareness and representing the ED community wherever you go. Perfect for raising awareness and representing the ED community wherever you go.
- [ED Society Zip Up Hoodie](https://edsociety.co.uk/online-shop/ed-society-zip-up-hoodie/) - Stay comfortable and show your support with our zip up, grey hoodie. Featuring embroidered ED Society logo on the front and larger on the back with #NoSweat Perfect for raising awareness and representing the ED community wherever you go. OLD LOGO ZIP UP HOODIE - CURRENTLY ON SALE

## Events

- [ED Society Christmas Party 2026](https://edsociety.co.uk/event/ed-christmas-party-2026/) - Join us for our favourite event of the year! This isn’t just a party—it’s a chance for our community to feel connected, supported, and celebrated.
- [ICED25 - 9th International Conference for Ectodermal Dysplasia](https://edsociety.co.uk/event/iced25-9th-international-conference-for-ectodermal-dysplasia/) - It is with great honour we announce our role as hosts for the 9th ICED Conference, to be held in Birmingham on 10th – 12th June 2025.
- [Family Day at ICED25](https://edsociety.co.uk/event/family-day-at-iced25/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ min_height=”985px” custom_padding=”0px||7px|||” global_colors_info=”{}”][et_pb_row column_structure=”1_4,1_4,1_4,1_4″ _builder_version=”4.27.4″ _module_preset=”default” module_alignment=”center” min_height=”261px” height=”100px” custom_padding=”0px||11px|||” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2025/03/Generations.jpg” alt=”CEO Diana Perry talking to two ED members at the christmas party” title_text=”Generations” align=”center” force_fullwidth=”on” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_image][/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https://edsociety.co.uk/wp-content/uploads/2025/03/Angus.png” alt=”black and white image of Professor Angus Clarke holding a microphone” title_text=”Angus”
- [ED Christmas Party 2024](https://edsociety.co.uk/event/ed-christmas-party-2024/) - [et_pb_section fb_built=”1″ _builder_version=”4.27.0″ min_height=”1200.1px” custom_margin=”||-108px|||” custom_padding=”0px||0px|||” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.0″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_padding=”4px||0px|||” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.0″ text_font=”–et_global_body_font||||||||” text_text_color=”gcid-f743be1f-46bf-4685-bc55-7e8b347eb98d” text_line_height=”1.8em” background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ global_colors_info=”{%22gcid-f743be1f-46bf-4685-bc55-7e8b347eb98d%22:%91%22text_text_color%22%93}” sticky_enabled=”0″] We are thrilled to announce that our beloved ED Christmas party is making a triumphant return this year! Mark your calendars for Saturday, 7th December 2024, as

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