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News & Events

Stay Informed and Stay Safe

For all the latest information and updates regarding Ectodermal Dysplasia and the coronavrius pandemic, please visit our dedicated Covid Updates page.

Whether it is tips, information, advice or if you just need someone to talk to, remember we are here to listen and support you through this time.

Covid Guide

Charity Update March 2020

Our new Charity update for March is now available to view here.

Previously we have sent out 4 newsletters during the year, but have now decided to only keep our annual October newsletter which is posted and send out regular update mailings. To do this we need to make sure everyone understands the importance of completing the contact details form to enable us to include you in such mailings. You can chose to opt out at any time. We would like to make you aware that it is essential to add info@edsociety.co.uk to your email address book to stop these from entering your junk folder.

We are very fortunate to have members who wish to share their stories and ED journeys with us, either by writing articles for our newsletters or writing their own blogs!  Head over to our Parents page to have a read and hopefully find some extra reassurance and support that you are not alone!

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