Date: Sunday 3 October 2021
Please donate and show your support to our #TeamED runners Paddy, Stuart and Hayley in this years London Marathon.
Paddy’s money giving page.
Stuart’s money giving page.
Together we can spread awareness, & raise much needed funds and fight for those with Ectodermal Dysplasia, to get the diagnosis, support and treatment they need.
Your work and efforts help the ED Society support individuals who have ED, their families, researchers, health and other professionals to develop and share expertise, increase awareness and understanding, and assist with the day-to-day management of ED.
This year the Virgin Money London Marathon on Sunday 3 October is set to be the world’s first 100,000-person marathon, with 50,000 participants in a virtual event around the globe joining 50,000 on the traditional course from Blackheath to The Mall.
Got your own place?
If you’ve secured your own place in the Virtual Virgin Money London Marathon you can still join #TeamED and we’ll support you all the way. There’s no minimum fundraising target, we just ask you to raise as much as you can. Email us email@example.com
How you help
The ED Society’s mission is that every individual and family affected by Ectodermal Dysplasia is equipped with the knowledge needed to manage Ectodermal Dysplasia effectively and live life to the full; and that medical professionals have the information and understanding they need to support those affected.
We seek to raise funds to provide support services, equipment and grants to families affected by Ectodermal Dysplasia in the UK.
Funds raised by our members, no matter how big or small the donation, goes a long way. It helps the Society to be able to thrive and succeed in helping our ED family in many ways.
You can find out more about how your fundraising and donations help here.
28th April 2019 what a day that was…… Stuart Atkiss London Marathon 2019
“I will be hoping to raise as much as I can for the Ectodermal Dysplasia Society. This will be my first (and most likely!) only marathon” – Laura Page London Marathon 2018
“I was only given six months to live, but I got myself fit enough to complete the marathon” – Clive Bentley London Marathon 2018