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The ED Society – A Guide to Ectodermal Dysplasia: £4.99 incl. p&p

In this extensive 48 page booklet you will find everything you need to know about ED.  It would be helpful to pass it onto your GP, other professionals, family and friends for them to be able to get as much information as they can and understand how ED affects you.

everybodys different ectodermal dysplasia Everybody’s Different – £6.49 incl. p&p

This introduction to Ectodermal Dysplasia has been designed for children age 4+, whether they are affected by ED or not, and allows parents and schools to explain the condition in child-friendly terms.  It facilitates empathy and gives children the ideas and motivation to then help their peers.

** Special offer – buy both books for £10.49 incl postage**


To purchase the books, please follow the PayPal link.  If you could please remember to pay via friends and family to avoid incurring fees to the Society, and leave a note on PayPal that the money you are paying is for the book.


ED Society T-shirts are available in different sizes for £12.50 including p&p

If you are organising or taking part in a fundraising event, we are happy to supply you with a t-shirt free of charge.


Wristbands – 99p Small: 150mm, Medium: 180mm, Large: 202mm
Key fobs – 75p  each
Pens – 75p each


We are happy to send wristbands to our members free of charge if they are wanting to sell them at schools/events etc to help raise funds for the Society.

Postage is an additional 83p for up to 4 items.  Postage costs will be higher for more than 4.

Contact us if you wish to purchase any of the above items and help to show your support to the ED Society