THE ED SOCIETY IS TURNING 30!

THE ED SOCIETY IS TURNING 30!

THE ED SOCIETY IS TURNING 30! This October, the ED Society celebrates 30 years of supporting people and families affected by Ectodermal Dysplasia. And today, we’re proud to unveil our official 30 Years celebratory logo. But this milestone isn’t just about...
“Don’t let her continue playing tennis”

“Don’t let her continue playing tennis”

“Don’t let her continue playing tennis.” Those were the words once given to the parents of our patron, Fran Jones, as a young child living with ectodermal dysplasia. Today, Fran is competing on the world stage. In her recent interview with The Times, Fran speaks...
The ED Society attend the annual RCPCH Conference

The ED Society attend the annual RCPCH Conference

This week, Diana and Danielle are attending the Royal College of Paediatrics and Child Health (RCPCH) Conference in Birmingham on behalf of the ED Society. Being here is a really valuable opportunity for us to raise awareness of ectodermal dysplasia, share information...
Double Marathon Success – Thank You, Calum!

Double Marathon Success – Thank You, Calum!

He did it!  A huge congratulations to Calum for completing the London Marathon in an amazing time of 3:40 for #TeamED!  We’ve absolutely loved seeing all the photos and the incredible atmosphere around him — what a journey it’s been. Taking on both the Brighton and...