Home » News

News & Events

We’ve done it again……

On Tuesday 10th September, Diana attended the 2019 BMA Patient Information Awards in London.  Our children’s book, Everybody’s Different was not only awarded “highly commended”, but it was also entered into the Special Awards section.  We were runner up for “Equality, Diversity, and Inclusion” We are overwhelmed with the success of the book, hard work sure does pay off! Find out more about the awards and what Diana and the judges had to say here.

CEO Diana Perry collecting our award alongside Envision Pharma Group.

Jeans For Genes Day 2019

This year, Jeans for Genes day takes place on Friday 20th September. Organising a Jeans For Genes day in your workplace is fun & simple! Just ask everyone to come to work in their jeans and make a donation! To find out more on how you can get involved and sign up for your free fundraising pack, please head to our Jeans for Genes page.

The ED Society are award winners!

On July 4th, Diana attended the Communique Awards in London. The ED Society were nominated in the ‘Writing Excellence’ category with Envision Pharma Group for our children’s book ‘Everybody’s Different’ -and we WON!! We are still in such shock and couldn’t be happier – what an achievement! Please take a look at our press release here.

Communique Awards – London July 2019

ED Christmas Party 2019

Before we know it, the Christmas party will be upon us and we are busy preparing here in the ED office. Registration forms were emailed out a couple of months back and we will be re sending again over the coming weeks. The deadline is 1st November but the sooner we have them back would be great. If you do not have your registration form you can download here.

ED Christmas Party 2015

International Support

Happy faces in the ED office this month! A family in Kenya has received their copies of our books. After hearing about their struggle to find people who understand their condition & lack of support, we wanted to do all we could to help! – March 2019

This image has an empty alt attribute; its file name is image-1.png
Sarahh and her Son, Kenya

We are very fortunate to have members who wish to share their stories and ED journeys with us, either by writing articles for our newsletters or writing their own blogs!  Head over to our Parents page to have a read and hopefully find some extra reassurance and support that you are not alone!