Archives: Articles

	File	Category	Date
	EspeRare press release with Dermelix 2019		Apr, 2019
	Esperare-Press-Release-April-2019 Esperare Press Release April 2019.docx	Babies, Medical, Research, XLHed	Apr, 2019
	Care of Babies booklet	Babies, infants, Temperature	Mar, 2019
	The First Years	Babies, Feeding, Newborn, Temperature	Mar, 2019
	Ask your pharmacist	Medical	Mar, 2019
	TheEdimerX	Babies, Newborn, Research, XLHed	Mar, 2019
	Care of Babies booklet	Babies, Children, Mild Variant, Support	Dec, 2018
	Autumn 2018	Members Stories, Newsletters, Support, Tips	Nov, 2018
	Summer 2018 newsletter	General, Members Stories, Newsletters, Support	Sep, 2018
	How to keep cool – which products are best How to keep cool – which products are best	Cooling, Overheating, Sweating, Tips	Sep, 2018
	Genetic Carriers – how to tell your partner	Genetics, Support, Tips	Aug, 2018
	Alternatives to Dental Implants	Dental, Teeth	Aug, 2018
	IP – a mothers story	Incontinentia Pigmenti, Members Stories, Stories	Aug, 2018
	IP – small, but not significant	Incontinentia Pigmenti, Members Stories, Newsletters, Stories, Support	Aug, 2018
	Proud of the Society	General, Stories	Aug, 2018
	IP My Story	Incontinentia Pigmenti, Members Stories	Aug, 2018
	The EYE in IP	ED Syndromes, Eyes, Incontinentia Pigmenti	Aug, 2018
	University campus doctors	Education, Stories	Aug, 2018
	The psychosocial impact of living with visible difference as a teenager	Bullying, Research, Support	Aug, 2018
	Working Together for Rare Diseases	Medical, Research, Skin, Stories, Support	Aug, 2018
	Growing up with ED	Bullying, Members Stories, Stories	Aug, 2018
	School boy who overheats in PE takes up Snowboarding	Children, Members Stories, Overheating	Aug, 2018
	ED and Sport	Children, Members Stories, Schools	Aug, 2018
	ED Doesn’t Stop Me	Members Stories, Stories	Aug, 2018
	Useful Advice for School	Children, Education, Schools, Stories	Aug, 2018