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Appearance
Babies
Benefits
Bones
Bullying
Children
Clefting
Cooling
Dental
Dentures
Diagnosis
Ears
Eating
ED and other conditions
ED Syndromes
Education
ENT
Eyes
Feeding
Forms
Fundraising
General
Genetics
Growth & Development
H.E.D
Hair
Hands and Feet
Haywells
Hearing
heat
implants
Incontinentia Pigmenti
infants
Infections
Inheritance
Medical
Members Stories
Membership
Mild Variant
Nails
Newborn
Newsletters
nose
Overheating
Pregnancy
Rapp Hodgkin Syndrome
Research
Scalp
Schools
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Wigs
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XLHed
Archives: Articles
File | Category | Date | |
---|---|---|---|
IP Our story IP Our story | Incontinentia Pigmenti | May, 2019 | |
Hypodontia Clinics FINAL 010519 | May, 2019 | ||
Apr, 2019 | |||
Dermelix press release 2019 | Apr, 2019 | ||
EspeRare press release with Dermelix 2019 | Apr, 2019 | ||
Esperare-Press-Release-April-2019 Esperare Press Release April 2019.docx | Babies, Medical, Research, XLHed | Apr, 2019 | |
Care of Babies booklet | Babies, infants, Temperature | Mar, 2019 | |
The First Years | Babies, Feeding, Newborn, Temperature | Mar, 2019 | |
Ask your pharmacist | Medical | Mar, 2019 | |
TheEdimerX | Babies, Newborn, Research, XLHed | Mar, 2019 | |
Care of Babies booklet | Babies, Children, Mild Variant, Support | Dec, 2018 | |
Autumn 2018 | Members Stories, Newsletters, Support, Tips | Nov, 2018 | |
Summer 2018 newsletter | General, Members Stories, Newsletters, Support | Sep, 2018 | |
How to keep cool – which products are best How to keep cool – which products are best | Cooling, Overheating, Sweating, Tips | Sep, 2018 | |
Genetic Carriers – how to tell your partner | Genetics, Support, Tips | Aug, 2018 | |
Alternatives to Dental Implants | Dental, Teeth | Aug, 2018 | |
IP – a mothers story | Incontinentia Pigmenti, Members Stories, Stories | Aug, 2018 | |
IP – small, but not significant | Incontinentia Pigmenti, Members Stories, Newsletters, Stories, Support | Aug, 2018 | |
Proud of the Society | General, Stories | Aug, 2018 | |
IP My Story | Incontinentia Pigmenti, Members Stories | Aug, 2018 | |
The EYE in IP | ED Syndromes, Eyes, Incontinentia Pigmenti | Aug, 2018 | |
University campus doctors | Education, Stories | Aug, 2018 | |
The psychosocial impact of living with visible difference as a teenager | Bullying, Research, Support | Aug, 2018 | |
Working Together for Rare Diseases | Medical, Research, Skin, Stories, Support | Aug, 2018 | |
Growing up with ED | Bullying, Members Stories, Stories | Aug, 2018 |