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My Son Will Now Have His Dental Needs Fulfilled For Life

The ED Society has helped me and my son since shortly after his birth. They have supported me by gaining referrals to dental hospitals and supported me with DLA applications.

Without this knowledge, I would not have known how to achieve such things. My son is now supported by a specialist dental hospital, which will continue his dental needs for life.

When my son started school, I felt so nervous about how to best inform them of his needs, however, the ED Society helped with school care plans, and how to ensure the school had as much information as possible regarding his condition.

Whenever I need any help or advice, the ED Society is always there to help in any way they can, and I am forever grateful.A young boy with ED< wearing an orange t-shirt and black glasses, sat on the floor holding a live piglet wrapped in a blue and white blanket

Say hello to our new Ambassador

We are thrilled to share some incredible news with you!

Hannah walking the red carpet at Venice film festival wearing a thin strap flowing blue gown and walking with a ink walking stickThe ED Society are excited to announce our new Ambassador, someone whose journey is nothing short of inspiring and whose dedication promises to be a game-changer for our mission.

Our new ambassador is none other than Hannah Harpin, a remarkable girl who has overcome numerous challenges in her life, and is currently making waves in the world of modeling. She boasts a significant presence on social media and in the fashion industry, and we are overjoyed that she has accepted our invitation to advocate for our cause.

What makes this announcement even more special is that we have known Hannah since she was a baby, and we have had the privilege of being her first port of call for support. Over the years, we have built a strong and lasting relationship with her and her family.

“We are absolutely delighted to welcome Hannah to the ED Society team,” said Diana Perry, CEO.

“Her story of resilience and her commitment to making the world a better place are truly inspiring. We are confident that her involvement will help us reach new heights and drive positive change in our community.”

Hannah has faced adversity with incredible tenacity and strength. She sadly experienced severe bullying during her school years, but refused to let it define her. We stepped in to support her and provided funding for some of her wigs, and it warms our hearts to see how she has not only thrived, but also risen above the challenges posed by bullies. Today, she is a powerful activist for ableism and disability rights, fearlessly championing her cause and empowering others to do the same.

What is truly remarkable about Hannah is that she has turned her experiences into a force for change, and we are honored to have her on board as an ambassador for our charity. With her passion and dedication, we believe she will play a crucial role in helping us bring Ectodermal Dysplasia into the spotlight, advance our mission, and promote our cause to a wider audience.

Hannah has expressed her enthusiasm for her new role – “Being an ambassador means the absolute world tome. I first met someone who had the same condition as me, and his name was Fergus. Fergus taught me everything on how to become an ED ambassador and I’m glad to be following in his footsteps. I can now help children with ectodermal dysplasia, to help them reach their goals and give them something which I didn’t have as a child. I’m hoping to help women with ectodermal dysplasia too!”back view of Hannah looking over her right shoulder, painted in multi colour spots at photoshoot

We can’t wait to see all the incredible things Hannah will accomplish as part of our ED family. Her story is a shining example of triumph over adversity, and we are privileged to have her as a part of our journey.

Please join us in extending a warm welcome to Hannah, and stay tuned for the amazing work we will achieve together.